Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
When Scarlett was diagnosed with platelet storage pool disorder in 2011 the doctors told me she wouldn’t be able to play most sports. As she went from toddlerhood to adolescence the restrictions seemed endless and it felt like she was never going to find any after school activities that she would enjoy. It was obvious […]
One of the positive things about hemophilia is the different sports and hobbies it has reintroduced into our family life. When Micah was three, we attended our first hemophilia fundraiser.聽 It was at a bowling alley.聽 He absolutely loved it and thought it was funny when the pins fell down and everyone clapped. 聽He loved […]
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