Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
My son Caeleb has struggled with an inhibitor since he was 11 months old. Despite many doctors’ recommendations, it’s never been as “simple” as waiting to get below a 10 Bethesda Unit measurement to start immune tolerance therapy (ITT). He developed a rare allergy to factor VIII and there is no known treatment or protocol […]
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