Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
ÂˇHola, mis queridas madres y Feliz aĂ±o nuevo para todas! ÂżHas notado el cambio en las preferencias en alimentos en los Ăşltimos aĂ±os? Hoy les hablarĂ© de lo beneficioso que es comer saludable.Â De porque tener hĂˇbitos alimentarios saludables nos alarga la vida para disfrutar a nuestras futuras generaciones. Nuestros hĂˇbitos alimentarios, en gran medida, […]
ÂˇSaludos nuevamente a todas las extraordinarias mamĂˇs de nuestra comunidad, un fuerte abrazo desde la distancia! Para los que no me conocen, tengo un niĂ±o de 11 aĂ±os con hemofilia A, que se llama IvĂˇn Manuel.Â Hoy les escribo, pensando en los diferentes retos que esta pandemia nos ha traĂdo a nuestras vidas. Desde los estudios […]
Hola, mis amigas de Infusing Love Moms Blog. Soy Ana, madre de un hijo con hemofilia Tipo B, deficiencia de Factor IX moderado y vivo en El Paso, Texas. Hoy quiero platicar con ustedes de el amor, el agradecimientoy el perdĂłn. El amor es, quizĂˇ, el sentimiento mas hermoso que el ser humano pueda experimentar. […]
My son, Michael, has severe hemophilia B. He is soon to be 28 years old. Wow! That time flew by! I remember the day we found out he had hemophilia. He was 11 days old. We were shocked, scared and ready to take on this challenge life had given us.Â We educated ourselves and our […]
Strong. Every January I reflect on the year to come. I chose a word based on something personal, either to myself or to our family. This year I chose the word: Strong. I chose that word specific to my goals for the year. Iâ€™ve been a consistent runner since 2015. In fact, I love it […]
Attending HFAâ€™s Symposium has always fascinated me. I have attended a few symposiums with my family: St. Louis, Cleveland, Las Vegas, and San Diego. During symposium, I networked with individuals who were in various fields: social workers, physicians, nurses, physical therapists, and patients.Â Days were filled with inspirational kickoff and educational breakout sessions. There […]
We are now four or five months into this very bizarre time of the COVID-19 Pandemic. If youâ€™re like me, Â youâ€™re not getting any more used to this â€śnew normalâ€ť but rather more than ever, ready for it to be over. While we may be ready to get back to life the way it […]
â€śEveryone can be great because everyone can serve.â€ť â€” MLK Jr. â€śService to others is the rent you pay for your room here on earth.â€ť â€” Mohammed Ali Volunteering is gift. It can be the best things youâ€™ll do â€” both for your community and you. For me, there are mental health benefits in getting […]
When I received Hemophilia Federation of Americaâ€™s Infusing Love: A Momâ€™s Blog schedule back in January for this yearâ€™s blogs, I thought, â€śOk I have plenty of time to think and write the best blog yet for me.â€ť Wrongâ€¦ As the months went on, the craziness with my boysâ€™ school and extracurricular activities and sports, […]
Our children face difficult things in their life on a daily basis. We teach them, we guide them and then pray it all works out. When they are little, we can control situations and speak for them when we believe we know our children better than anyone in the ER. We are the MOM! We […]
My sonâ€™s pediatric ophthalmologist tells a story about a little girl who was about 4 or 5 years old who came in for an eye appointment due to some concerns. It was determined the little girl had severe double vision. She was seeing double of almost every single object in her line of sight. The […]
I never thought this day would comeâ€¦. When Myles was first diagnosed with hemophilia A, I knew we had a long road ahead of us. Doctor appointments and worrying about safety both inside and outside of school, could always be scary. However, the scariest was the responsibility of making sure Myles always had the correct […]
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