Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
Dear Addy, Each year, I travel to Washington, D.C., and my state capitol to meet with my legislators and members of Congress to discuss issues that are most important to the bleeding disorders community. Due to COVID-19, I have heard that in-person visits are no longer viable options. How can I make sure my voice […]
On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance to states on implementing Essential Health Benefits (EHBs). 聽As you may recall, the Affordable Care Act will require individuals to have insurance coverage by 2014.聽 Individuals and business may purchase health insurance in a state based “health […]
The last couple of weeks have been exceptionally busy, I have found myself very much in a New York State of Mind. Special Kudos to Bob Fox, CEO and President of the Mary Gooley Hemophilia Treatment Center (Rochester, NY). Bob also serves as the New York Council on Bleeding Disorders, Bob took the point in […]
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