Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
Policy and advocacy sessions were among the many programs on tap at HFA鈥檚 recently concluded 2021 Symposium. Thank you to all who attended! It was wonderful to 鈥渟ee鈥 you at our virtual event 鈥 even as we plan, and fervently hope, to see you in person at HFA鈥檚 2022 Symposium in San Antonio. For those […]
In this quarter鈥檚 news: advocates notch another win, securing state level protection against copay accumulator adjusters; Missourians begin enrolling in the state鈥檚 expanded Medicaid program; and ACA marketplaces report 2021 enrollment totals, rates for 2022, and other developments. North Carolina becomes 12th state to ban copay accumulator adjusters Governor Roy Cooper signed S.B. 257 into […]
Policy and advocacy sessions sparked robust discussions at HFA鈥檚 recently concluded 2020 Symposium! Thank you to all who attended 鈥 it was wonderful to 鈥渟ee鈥 you at our virtual event. For those who couldn鈥檛 join us in real time, you can still view the recorded sessions on your own schedule for the next few months […]
Click Below to Translate Page to Spanish. Federal rule allows health plans to discount manufacturer copay assistance. On May 7, 2020, the U.S. Department of Health and Human Services finalized a rule that affects individuals who rely on聽patient copay assistance programs. The HHS rule (the 鈥2021 Notice of Benefits and Payment Parameters,鈥 or NBPP) allows […]
FEATURED STORIES Product recall announced; patient organizations are in ongoing communications with manufacturer Bayer announced the recall of two lots of Kogenate庐聽FS antihemophilic factor (recombinant) 2000 I.U. vials on July 19, 2019. Bayer announced that 3000 I.U. of one product (Jivi), past its expiration date, had been mislabeled as another product (2000 I.U. of Kogenate […]
FEATURED STORY What to Watch in the States in 2019 鈥 State Medicaid Trends Legislative sessions have begun in all but four states (Alabama, Florida, Louisiana and Nevada begin sessions in the months ahead).聽 As lawmakers begin to tackle the numerous issues they need to address in the coming months, let鈥檚 look at what to […]
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