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Infusing Love: Her Wild Man

May 13, 2020

Sometimes I feel that Maddox doesn鈥檛 even have hemophilia, because he鈥檚 such a wild man, and responds so well to his new medication. At first, we were so scared as a family to make the switch. Understanding that every family is different, we didn鈥檛 want to be swayed in the wrong direction. We have seen […]

Infusing Love: Sentirse Empoderado

April 1, 2020

Saludos a todas las madres que, como yo, tienen en su vida y en sus corazones una persona muy especial que llena sus d铆as de felicidad. Les contar茅 un poquito sobre mi vida. Crec铆 en una familia donde la hemofilia estaba en nuestro diario vivir. Esto me hizo ver la condici贸n como algo normal. Mi […]

Infusing Love: Transitioning from Teen to Adult

March 25, 2020

  I remember when Nick was much younger, we went to a meeting and one of the sessions was on transitioning from teen to adult. I remember thinking I didn鈥檛 need/want to go to that because we were nowhere near that time. I blinked and all of a sudden, we are at that time. And […]

Infusing Love: Back to Reality

March 19, 2020

There are times as a hemophilia parent where hemophilia is not at the forefront of your mind. Times where you can just live and enjoy every moment without worry. It鈥檚 almost as if hemophilia is a distant memory. You run on autopilot 鈥 not thinking, just doing. 聽\At these times hemophilia has absolutely no impact […]

Infusing Love: Durante la Adversidad

March 5, 2020

Hola a todas las lindas mamas de este blog, mi nombre es Lupe Torres, vivo en la ciudad de Las Vegas, NV. Soy mam谩 de tres hermosos hijos. Tengo una hija de 23 a帽os, un var贸n de 24 y mi m谩s peque帽o de 18 a帽os. Mi hija Michelle de 23 a帽os fue diagnosticada con VWD […]

Infusing Love: Camp Time

February 12, 2020

Even though I have never attended camp, and had no idea what it was all about, I did not want my son, my only child, to miss out on the experience. The first time Omar attended camp; he was just 7 years old. He looked so sad and didn鈥檛 want to stay, but we all […]

Infusing Love: D铆a de Acci贸n de Gracias en mi Hogar

February 5, 2020

The English version of this Infusing Love: A Mom’s View blog can be found below.聽   En Puerto rico se celebra el D铆a de Acci贸n de Gracias (Thanksgiving) al igual que en los Estados Unidos continentales. La verdad es que todos los d铆as festivos federales se celebran, pero 茅ste lo hemos 鈥渃riollizado鈥 en gran medida. […]

Infusing Love: Seeing Life Differently

January 30, 2020

My son鈥檚 pediatric ophthalmologist tells a story about a little girl who was about 4 or 5 years old who came in for an eye appointment due to some concerns. It was determined the little girl had severe double vision. She was seeing double of almost every single object in her line of sight. The […]

Infusing Love: What a Decade it has Been

January 14, 2020

Wow, it鈥檚 the end of the year and the end of a decade! I am not leaving this decade the way I began. My decade began with a 7-year-old son with severe hemophilia A, who I wouldn鈥檛 allow to play recreational sports. I was pregnant with twins, one being a boy, unsure if I was […]

Infusing Love: Unstoppable Resilience

November 26, 2019

My dad taught me how to box and dance salsa; with these two skills鈥攕alsa and boxing鈥擨 learned how to defend myself and to never give up. I learned to always take notes on movements and to dance my way to resilience. Have you ever had the biggest hiccup that you just couldn鈥檛 get rid of? […]

Infusing Love: A New Day Has Come

November 13, 2019

I never thought this day would come鈥. When Myles was first diagnosed with hemophilia A, I knew we had a long road ahead of us. Doctor appointments and worrying about safety both inside and outside of school, could always be scary. However, the scariest was the responsibility of making sure Myles always had the correct […]

Infusing Love: Stand Up to Bullying

November 6, 2019

  Bullying has no shame. It shows no prejudice. Bullying affects anyone of any size, age, and ethnicity.聽 It affects all of us. When I watch grown people intentionally hurt each other with words and actions, it always surprises me. One day I asked a young lady why she was making fun of her coworker. […]

Infusing Love: Stand Up to Bullying

October 23, 2019

  October is National Bullying Prevention Month. For older moms, we think of bullying happening at school and after school in the neighborhood. But the unfortunate reality is that there is now the addition of bullying at home through social media and texts.聽 Historically, many have referred to bullying as a 鈥渃hildhood rite of passage.鈥 […]

Infusing Love: Pride and Perseverance

October 3, 2019

  My mother was called a 鈥渂leeder鈥 when I was growing up. I remember she almost died from a hemorrhage after surgery and her nose constantly needed to be packed at the emergency room due to nose bleeds. I never bled like her and never considered I might have something too. I went 36 years […]

Infusing Love: Literally Driving Me Crazy!

August 29, 2019

One night I was cooking tacos for dinner. I was browning the beef and preparing to add the seasoning for the 10-minute simmer. I went to get the taco season package and the soft taco wraps out the pantry, when I realized I didn鈥檛 buy the soft taco wraps! There is nothing worse than realizing […]

Infusing Love: New Challenges

July 25, 2019

  Back in February Maddox鈥檚 provider suggested we try a new medicine. This medicine would allow him to be poked subcutaneously once a week, and with no need of factor replacement unless there is an emergency. After about six months on the new medication, we went in for Maddox鈥檚 yearly appointment, and removing his port […]

Infusing Love: Coming to Terms

July 18, 2019

  Omar was born in New Jersey, weighing close to 10 pounds. His second day at the hospital, I received the news of his hemophilia diagnosis. Initially, I felt isolated and alone and I did not know where to begin my search for information, assistance, understanding, and support. Despite that I had some knowledge because […]

Infusing Love: Broken, But Not Beaten

July 2, 2019

    Winter weather has always raised my hemophilia mom radar. Icy sidewalks make me very nervous and I鈥檝e yelled out, 鈥淚ce ahead,鈥 many times over the last 15 years in warning to Thomas. But as we all know, we can鈥檛 be with our kids all day, every day and accidents are bound to happen. […]

Infusing Love: Tattoos

June 26, 2019

  Our son, Michael, recently surprised us with the news that he was going to get a tattoo! I know, I know, he is 26 years old and can make his own decisions.聽But he still has severe hemophilia B with inhibitors. I got that knot in my stomach that all moms get 鈥 it鈥檚 a […]

Infusing Love: Singing the Praises of Fathers

June 19, 2019

I have to admit this blog gave me extreme anxiety about writing.聽Not in the respect that my father (Thomas Gibson), my husband (Alan) nor my father-in-law (James Hooper) are horrible fathers. It鈥檚 just very difficult to express my absolute gratitude to these individuals.聽These three fathers and grandfathers play such an important and vital role both […]

Infusing Love: 隆Me logr茅 encontrar a m铆 misma!

May 29, 2019

  This blog is translated in English below. Este pasado d铆a de las madres celebr茅 mi a帽o n煤mero 23 de ser madre. 隆No s茅 ni como esto pas贸 tan r谩pido! En una pesta帽ar de ojos mis hijas han crecido y se han independizado, pero soy una mam谩 muy feliz. Criar a hijas involucra mucho tiempo […]

Infusing Love: An Undeniable Connection

May 14, 2019

If you鈥檝e ever attended HFA鈥檚 Symposium, you probably know that the mom鈥檚 rap session is usually one of the most popular sessions and quite often has the most profound conversations. If you haven鈥檛 been 鈥 a mom鈥檚 rap session is just that 鈥 a chance for moms to sit around the room and talk about […]

Infusing Love: The Ideal Mother’s Day

May 8, 2019

  Most that know me will tell you I do everything for my kiddos. That I spoil them. That I鈥檓 always driving them to after school activities or going to the park, for walks, bike rides, etc. I rarely say no and let them try whatever sports and activities they want to do. I spend […]

Infusing Love: Step Aside, Mom Advocate Coming Through

May 2, 2019

  This past month we had the fight of our lives. My employee insurance runs February through January and my employer offered a new insurance plan this year. Much to our dismay, the insurance would not cover my son鈥檚 factor medication. Our insurance wanted our son to fail on three out of four factor products […]

Infusing Love: A Surprising Conference

March 13, 2019

  Parent teacher conferences are synonymous with an interrogation, grilling or even a public debate. I spent about 12 years being on the other side of that debate. I was the one calling the shots, telling parents what their children鈥檚 strengths and weaknesses were academically, socially and behaviorally. I was comfortable having the tough conversations […]

Infusing Love: Facing the Music

March 6, 2019

  It was 2002 when I married Harry, my high school sweetheart. Even then, I never discussed my dad with him because I had to keep my promise. I promised my dad who passed away when I was only 16 to never talk about hemophilia, AIDS, none of it. Harry put the pieces together though, […]

Infusing Love: Understand Your Stress

February 6, 2019

Caregiving is hard! Did I just state the obvious? I recently saw yet another article about caregivers, caregiver stress, caregiver burn out and the importance of self-care. You know, we鈥檝e all seen them. If you鈥檙e like me you may even roll your eyes when you think there are some people that need to be told […]

Infusing Love: I Get By With Help From My Friends

December 31, 2014

              I am a true believer in the saying, 鈥渒nowledge is power.鈥 However, I also believe that the knowledge you attain must come from the correct source and at the right time. I have learned that this is even more true when it comes to hemophilia and motherhood. It […]

Welcome New Mom Bloggers!

May 14, 2014

When I think of summer I am reminded of my childhood spent outside playing with my friends. We’d run barefoot in grass or hang out at the pool. Sometimes I long for those days and what I realize that I miss the most is the companionship of my friends. Being a mommy is isolating sometimes, […]

Adding More Mommy Friends to the Playgroup

June 26, 2013

When my oldest was first born, I was part of a weekly playgroup; a group of five to seven moms that would sit around a plate of cut-up vegetables and lemonade.聽 Through a fog of sleep deprivation, we exchanged stories of introducing our babies to solid food and comparing which brand of diapers worked best.聽 […]


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