Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
鈥淪o, he鈥檚 still wearing the helmet?鈥 The question, posed by HTC staff at our recent annual visit, gave me pause. Yes, my son is almost 5 years old and still wearing his helmet any time his feet are on the floor. I know this is a controversial topic. I鈥檝e seen the comment threads on many […]
Note: The below is an edited version of a press release by UniQure.聽The original release can be read in it’s entirety聽here. On June 11, 2016,聽uniQure N.V. announced that additional data from its Phase I/II clinical trial of AMT-060 in hemophilia B patients were presented at the 21st聽Congress of the European Hematology Association (EHA) in Copenhagen, […]
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999 N Capitol Street NE Suite 301
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Phone: 202.675.6984
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Email: info@hemophiliafed.org
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