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National Hemophilia Foundation and Hemophilia Federation of America Partner for 鈥淭ogether Project鈥

September 8, 2021

FOR IMMEDIATE RELEASE聽 Media Contacts Ilana Ostrin, National Hemophilia Foundation iostrin@hemophilia.org 212-328-3769 Meghan Lawton, Hemophilia Federation of America m.lawton@hemophiliafed.org 607-423-4496 National Hemophilia Foundation and Hemophilia Federation of America Partner for 鈥淭ogether Project鈥 New partnership kicks off with a focus on mental health New York, NY/Washington, D.C.鈥 Today, the National Hemophilia Foundation (NHF) joins the Hemophilia […]

Infusing Love: Accepting the Challenge

May 12, 2021

This blog was originally written in Spanish. To read in Spanish, select “Spanish” in Google Translate:聽 I am the mother of a 15-year-old girl, Yanira, with a rare bleeding disorder, severe factor V deficiency. Remembering how the process was to detect her condition and diagnosis reminds me of the distinguished courage she has had since […]

Factor I Deficiency: A Voice for a Rare Community

April 8, 2016

My name is Rick Kelly, and my wife, Josie, I are the proud parents of Forrest. Forrest has a rare bleeding disorder called afibrinogenemia, or Factor I deficiency. This is the story of afibrinogenemia in three anecdotes that explain what afibrinogenemia is, the current state of treatment and its outlook for the future. In sharing […]


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