Donate

Washington Wire: October 2019

October 31, 2019

Open Enrollment begins for 2020 insurance plans. The Open Enrollment Period聽is a time frame each year when health insurance plans聽are required by law to accept applications from聽new plan聽enrollees regardless of their health history. This also is the time when you can choose to stay with your existing health plan if it is the right one […]

Genentech Issues Statement on Hemlibra Particles; MASAC Responds

October 7, 2019

Today, Genentech provided the following statement regarding reports of particulate matter in vials of Hemlibra. You can read Genentech鈥檚 statement below, and can read comments on the statement from NHF鈥檚 Medical and Scientific Advisory Council (MASAC). The events of the past several months, including today鈥檚 announcement by Genentech, underscore the importance of the joint Safety […]

HFA & NHF Discuss Bayer Recall with FDA

October 7, 2019

HFA and NHF are pleased to share a brief update with the community concerning a recent meeting we had with the FDA as well as a number of additional resources that the FDA provided after the call.聽 HFA and NHF will continue to update the bleeding disorders community as any further information develops. Please note […]

HFA & NHF Collaborate on Safety Concerns

October 1, 2019

  Recently there has been a lot of news related to the safety of the bleeding disorders community. HFA & NHF are working together to address the issues important to patients. Please read for further information on how you can provide your thoughts and concerns and to learn more about our plans for moving forward.

Infusing Love:聽 A Brotherly Bond

February 13, 2019

鈥淲atch out for my brother. He鈥檚 a bleeder,鈥 Logan will often say when we are at an interactive birthday party. Logan is Maddox鈥檚 5-year-old brother. He is extremely protective of him. Whenever we are at an event Logan will do his best to 鈥減rotect鈥 his little brother from anyone pushing him too hard or potentially […]

Infusing Love: Talk With Your Children

February 28, 2018

Disclaimer: At HFA, we value all opinions. This blog only reflects the opinion and experiences of the individual mother/writer. We encourage you to talk with your children about a school safety plan, and have provided a resource at the end of this blog entry. ________________________________________ Around 11 a.m. on April 20, 1999, in Littleton, Colorado, […]

Infusing Love: Meet Stephanie

June 8, 2017

As parents, we are always talking about the safety of our kids, families, cars, food, neighborhoods, churches, malls etc.聽聽Let鈥檚 face it: our world is not as “safe” as it used to be, except when it comes to hemophilia! As a mother of a very active two-year-old, a sister of a stubborn 40-year-old, and the niece […]

Take a Hike! Safety Tips for the Trail

July 1, 2016

It is important for individuals with bleeding disorders to participate in some form of physical activity.聽 Being physically active helps to strengthen one鈥檚 muscles, bones and joints.聽 One of the many benefits of having a strong healthy body can be a reduction in the number of bleeding episodes an individual might experience. Of equal importance […]

Dear Addy: National Safety Month

June 13, 2016

Dear Addy, My son is about to start summer vacation. While he is excited, I鈥檓 concerned about all of the activities he will be doing. It seems everything he enjoys involves risking a bleed. How do I monitor my child鈥檚 safety while allowing him to have fun this summer? Signed, Anxious About Summer Break Dear […]

Hiking Safety Tips: Staying Safe on the Trail

July 30, 2015

Looking for a fun, challenging, outdoor聽physical activity? 聽Try hiking!! Hiking is a safe and popular sport for people with bleeding disorders. Not only can many forests be reached without a lot of driving, but hiking can be a fun and inspiring activity for the whole family. 聽Along with the excitement of enjoying nature, hiking is […]

FitFactor Video: Bicycle Safety for Kids

July 25, 2014

Riding a bicycle is聽 a great way to have fun, exercise and聽stay聽healthy.聽 Whether your child is just learning to ride or has been on a bicycle for years, it is always important to encourage him or her to ride safely.聽 Teaching children聽how to stay safe on a bike聽when they are young聽can create safety habits they […]

HFA’s FitFactor Swimming Pool Safety-Video

June 13, 2014

Summer is finally here!聽 As the kids head off to their summer activities it is important to keep safety measures in mind.聽 This FitFactor swimming video segment shows how pools can be a great place for kids (and adults), especially those with hemophilia聽or other bleeding disorders聽to play, how water can help protect vulnerable joints, and […]


Sign up for E-mails, Dateline Magazine, and other ways to stay connected.