Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
Next week, my 15-year-old son with severe hemophilia A will go back to school. Normally at this point in the summer, I鈥檝e done my due diligence by asking for his teachers鈥 names, ensured his schedule doesn鈥檛 have him running all over campus, and asking for a meeting with the powers that be to teach them […]
Every hemo mom has the day she must send her child off on an overnight school trip, trusting that she has done everything she can to prepare her child for the responsibility of being on their own. My time came a few weeks ago when my son went to Orlando with his Sing Out […]
When ABC premiered, 鈥淪peechless鈥 last fall, I wasn鈥檛 sure if it would meet my expectations. Would it show special needs parenting and family life in a realistic, often sarcastic way, or would it have the feel of an afterschool special? I鈥檓 happy to say it鈥檚 readily become one of a handful of shows we watch […]
As parents of a nearly twenty five year old son, my husband George and I have enough to write a book about being the parents of a child with severe hemophilia B. There are so many ups and downs raising Michael over the years. Our most recent up and down has been the transition of […]
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999 N Capitol Street NE Suite 301
Washington, D.C. 20002
Phone: 202.675.6984
Fax: 202.675.6983
Email: info@hemophiliafed.org
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