Donate

HFA understands that families affected by inhibitors are faced with unique medical and financial needs. The inhibitor community is challenged with bleed management, joint damage, venous access issues, pain issues, and social and emotional concerns. In addition to this is a great financial burden. Families affected by inhibitors miss time from school/work, are hospitalized frequently, and face mounting medical bills. HFA鈥檚 Inhibitor Support provides a safety net for families in need. All households affected by inhibitors are also eligible to apply for other HFA Helping Hands Programs including聽Emergency Assistance andItems Reimbursement.

Eligible households can apply for assistance with the following:

  • Educational Travel 鈥 Assistance for travel to attend eligible national and state bleeding disorder educational meetings. Please apply at least 30 days prior to the scheduled event.
  • Medical Travel 鈥 Assistance for travel for medically necessary procedures, surgeries, and/or second opinions
  • Tutoring/Educational Supplies 鈥 Assistance with the cost of tutoring or education related expenses

Inhibitor Support cannot cover any medical expenses including medical bills, dental bills, insurance premiums, co-payments, deductibles, medications, factor, etc. Please visit HFA鈥檚 Navigating Patient Assistance Programs Chart to find other financial resources.聽

HELPING HANDS REFERRAL FORM


Eligibility Requirements:

  • Eligible households must include at least one member with a diagnosed bleeding disorder
  • Eligible households must include at least one member with an active inhibitor: a measurable titer and/or shortened half-life
  • Must demonstrate financial need

Steps to Apply:

  1. 聽Complete a Helping Hands referral online (click red button). Referrals can be submitted by the applicant or a professional representative**聽 in the bleeding disorders community聽(healthcare provider, social worker, homecare/specialty pharmacy, local bleeding disorder organization).聽If the need is urgent, please specify why and when needed.
  2. Obtain written documentation showing proof of diagnosed bleeding disorder from a healthcare provider聽(doctor, nurse, physical therapist).聽Documentation can be in the form of a letter, medical visit notes, or聽this聽medical verification form.聽
  3. Obtain written documentation to confirm active inhibitor (a measurable titer and/or shortened half-life) from a healthcare provider聽(doctor, nurse, physical therapist).聽Documentation can be in the form of lab results, letter, medical visit notes, or聽this聽medical verification form.聽
  4. Obtain a letter of recommendation from a healthcare provider (doctor, nurse, physical therapist, healthcare social worker)聽stating specific reason for request and how it will support the patient鈥檚 inhibitor treatment. You can utilize the same聽medical verification form.聽
  5. Complete and submit the appropriate form for Tutoring/Educational Supplies Reimbursement, Medical Travel Reimbursement, or Educational Travel Reimbursement.
  6. Upload the documentation in the referral form or email to helpinghands@hemophiliafed.org. Once the referral is complete and all documentation received, a Helping Hands staff member will contact the applicant to collect/confirm application information and convey the approval decision. This process is generally completed within 30 days.聽Referrals are reviewed in order received unless an urgent need was specified in the referral.

*Please contact HFA at 202-675-6984 or helpinghands@hemophiliafed.org with any questions.
**A referral indicates permission to contact both the applicant and the referrer. We will be in touch with the referrer or a local professional about any safety issues raised in our phone interview.

HELPING HANDS REFERRAL FORM


Sign up for E-mails, Dateline Magazine, and other ways to stay connected.