Access is our bedrock principle
We defend and promote access to safe and effective treatments, as well as access to the quality, affordable coverage that pays for this care. We support the bleeding disorders community by providing information and tools to participate in monitoring, advocating, and supporting federal and state public policies. We work to ensure access to safe therapies and quality, affordable healthcare by mobilizing our community as leaders in rare diseases.
Many in the bleeding disorders community rely on patient copay assistance programs to help defray the out-of-pocket (OOP) cost of their prescription drugs. Unfortunately, health insurers increasingly are refusing to credit copay assistance toward patients’ deductibles and OOP maximums.
Copay maximizers are a health plan strategy that harms people with bleeding disorders and other serious health conditions. Health plans and affiliated PBMs use copay maximizers to redirect and drain copay assistance funds. In so doing, health plans profit from copay assistance programs that were supposed to help patients – while creating complexity and confusion, and exposing patients to higher overall health spending.
Hormonal or hormone-based therapies are commonly prescribed as first-line therapy for menstruating people with bleeding disorders. HFA will robustly defend continued access to these and all other safe and effective therapies and services that people with bleeding disorders need.
Patients with chronic disorders need the same medicine for long periods of time, often a lifetime. Requiring their medication to be pre-approved multiple times a year, through a lengthy and arcane process, creates unnecessary burdens for doctors and causes unnecessary delays for patients.