Healthy Living

Managing a complex and rare disease, such as a bleeding disorder, can be physically debilitating. and maintaining a healthy lifestyle is a critical part of managing a bleeding disorder. This list contains nutrition and movement resources to help.
Resource NameURLDescriptionTags
Nutrition.govhttps://www.nutrition.gov/ The website serves as a gateway to reliable information on nutrition, healthy eating, physical activity, and food safety for consumers. The site is updated on an ongoing basis by a staff of Registered Dietitians at the Food and Nutrition Information Center (FNIC) located at the National Agricultural Library (NAL), Agricultural Research Service (ARS), U.S. Department of Agriculture (USDA). nutrition education, physical activity
My Platehttps://www.myplate.govLearn how much you need from each food group and get a personalized MyPlate Plan based on your age, sex, height, weight, and physical activity level. Take a look at your current eating routine and pick one or two ways that you can switch to choices today that are rich in nutrition. Create a healthy eating routine to benefit your health now and in the future.nutrition education
Common Threadshttps://www.commonthreads.org/Common Threads is a national nonprofit that supports food as medicine and inspires communities to embrace healthy cooking, healthy eating, and the celebration of culture by providing children, families and educators with hands-on cooking and nutrition education classes. nutrition education
Old Wayshttps://oldwayspt.org/Oldways is a nonprofit organization helping people rediscover and embrace the healthy, sustainable joys of the “old ways” of shared cultural traditions. Oldways believes food is heritage’s greatest gift of all.nutrition education
Cooking Mattershttps://cookingmatters.org/Everyone Deserves Delicious, Healthy Food. Cooking Matters is on a mission to make eating healthier fast and affordable for families everywhere.nutrition education
American Diabetes Associationhttps://diabetes.org/healthy-living/recipes-nutrition/cooking-classesLearning how to cook can be daunting, especially if you are a person with diabetes wanting to make better food choices. Whether you are new to the kitchen or a seasoned chef who wants to make diabetes-friendly food choices, the American Diabetes Association® (ADA) offers free monthly live virtual cooking classes powered by Homemade.nutrition education, recipes
HFA Learning Central, Health and Wellnesshttps://www.hemophiliafed.org/learning-central/With new families being diagnosed and many approved medications, emerging treatments, and gene therapies in clinical trials, HFA addresses the need for patient and caretaker education through Learning Central. Learning Central offers online learning modules, accessible via computer, tablet, and mobile device, using an integrated learning management system (LMS).nutrition education
Cooking on a Budget (Recipe Book)https://www.familyfoodbank.org/uploads/7/9/9/6/79964306/food-bank-recipe-book-final-web-and-email.pdfThis cookbook will provide you with some new recipe ideas, a large proportion of which can be made using staples widely distributed through the foodbank. There are useful Top Tips to give you alternatives, ideas on what to do with leftovers and cooking on a budget as an individual or for the whole family.recipes
Cooking from the Pantry (Food Pantry Recipe Book)https://www.capitalareahealthalliance.org/docs/CookingFromThePantry_Web_FINAL.pdfIt can be challenging to feed your family healthy meals on a tight budget. This cookbook is intended to help you make the most out of foods that you’ll find at a local food pantry. recipes
Food Herohttps://foodhero.org/about-food-heroFood Hero allows a platform to budget, plan and create healthy meals and learn how to grow your own food. There are tips on budgeting, shopping, meal planning, and gardening. nutrition education
Eat Righthttps://www.eatright.org/The Academy of Nutrition and Dietetics offers information on nutrition and health including meal planning, recipes, and information to help prevent or manage health conditions.nutrition education
Playing it Safehttps://www.changinghemophilia.com/content/dam/biopharm/changinghemophilia/managing-hemophilia/lifestyle-tips/sports-and-exercise/Playing-It-Safe_0.pdfPeople with bleeding disorders vary widely in how they respond to taking part in sports, exercise, and activity. This booklet will provide you with general information about the benefits and the risks of participation, and how to participate safely. Remember, each person is unique, with different interests, goals, and bleeding complications. physical activity
Fitness with a Bleeding Disorder – Beyond the Basics https://www.youtube.com/watch?v=GQRZtqftHPEThe benefits of exercise have only become clearer over the past several decades. However, as often is the case, the bleeding disorders community has been more careful in adapting to these changes. This session will focus on the “yes, you can’s” not the “no, you can’ts” of exercising with a bleeding disorder. Let’s talk about the nitty gritty of lifting, cardio, and other exercise methodologies, and how much this practice can help you. Rachel Horton, DPT, PT will lead a discussion focusing on what exercising with a bleeding disorder looks like in 2021.physical activity
Isometric Excercises and Gentle Movementhttps://www.youtube.com/watch?v=hYbbjY9wjLM&t=239sLearn how to move your muscles while being gentle on your joints. Nancy Durben, a Physical Therapist at Oregon Health and Sciences University, leads you through gentle movements that you can do every day.physical activity
Being Active When You Have a Bleeding Disorderhttps://www.exerciseismedicine.org/wp-content/uploads/2021/04/EIM_Rx-for-Health_Bleeding-Disorder.pdfInformation regarding the health benefits of physical activity when you have a bleeding disorder including tips and cautions.physical activity
Health for Hemophiliahttps://www.healthforhemophilia.org/week-1Health for Hemophilia was developed by Cincinnati Children’s Hospital’s Hemophilia Treatment Center. The center believes living a healthy life is important not just for children with hemophilia, but for their families too.physical activity
Yoga's Numerous Benefits - HFAhttps://www.hemophiliafed.org/42811-2/An article from the Hemophilia Federation of America about the health benefits of yoga for the bleeding disorder community. physical activity
PBS - Yogahttps://www.pbs.org/show/yoga-practice/PBS offers accessible, free, content to all. This is a 13-part series by Yoga instructor Stacey Collins.physical activity
Pain Management for Bleeding Disordershttps://www.bleedingdisorders.com/living-well/pain-managementYou may experience increased physical pain related to your bleeding disorder. There are strategies to address the pain (in partnership with what is recommended by your doctor). pain management
HEMAWARE (Pain Management Strategies)https://hemaware.org/mind-body/pain-management-strategiesAn article by Bruce Goldfarb on dealing with joint bleeds and chronic pain related to bleeding disorders. healthy lifestyle
Mayo Clinichttps://www.mayoclinic.org/healthy-lifestyleInformation and tools for a healthy lifestyle across various life stages and topicshealthy lifestyle
Hemophilia News Today - Healthy Livinghttps://hemophilianewstoday.com/social-clips/tips-for-healthy-living/An article by Wendy Henderson on tips for living a healthy lifestyle with a bleeding disorder. healthy lifestyle
Steps for Livinghttps://stepsforliving.hemophilia.org/ A website with various information on how to manage health and other aspects of life throughout the life stages. healthy lifestyle
Cosmic Kidshttps://www.youtube.com/@CosmicKidsYoga/aboutYoga, mindfulness, and relaxation for kids. Interactive adventures which build strength, balance, and confidence - and get kids into yoga and mindfulness early!kids' healthy lifestyle
PBS KIDShttps://cptv.pbslearningmedia.org/collection/healthyeating/Videos of youth providing their motivation to healthy lifestyles as well as tips and tricks to being healthy. kids' healthy lifestyle
Whole Kids Foundationhttp://www.wholekidsfoundation.org/kids-clubMake it a family affair with the Kids Club. Further inspire your kiddos to start healthy eating conversations with books and activities from Scrapkins, Better Bites, Book Club and more!kids' healthy lifestyle
Choosy Kidshttps://choosykids.com/pages/meet-choosyChoosy is an evidence supported, influential health hero who helps develop healthy habits and behaviors in children, family, and staff. Choosy can help influence healthy behaviors in the classroom and at home.kids' healthy lifestyle
Nemours Kids' Healthhttps://kidshealth.org/en/parents/about.htmlThe site aims to give parents information about physical, emotional, and behavioral health topics based on various life stages of children. kids' healthy lifestyle, kids' physical activity
Kids Gardeninghttps://kidsgardening.org/KidsGardening supports families by bringing the benefits of gardening to kids. kids' healthy lifestyle, kids' physical activity
Healthy Childrenhttps://kidshealth.org/en/parents/about.htmlThe American Academy of Pediatrics developed the site to provide information about all aspects of health for children throughout the life stages.kids' healthy lifestyle
Cooking with Kidshttps://cookingwithkids.org/Cooking with Kids educates and empowers children and families to make healthy food choices through hands-on nutrition education with fresh, affordable foods.kids' healthy lifestyle, nutrition education
Eat Right - Kidshttps://www.eatright.org/for-kidsThe Academy of Nutrition and Dietetics offers recipes, health information, and meal planning for kids. nutrtion education, recipes
Play Workshttps://www.eatright.org/for-kidsPlay Works is an organization dedicated to encouraging children to play. Through play children learn social and emotional skills that help them perform better in the classroom, workplace, and life. Kids also discover the joy of physical activity through play. kids' physical activity
Sesame Workshophttps://sesameworkshop.org/topics/eating-well/Children can be empowered to make healthy choices. The materials in this link to support you in helping children develop healthy relationships with food and strategies for making easy, healthy, budget-friendly snacks and meals!kids' healthy lifestyle
Disney: Healthy Livinghttps://citizenship.disney.com/healthy-livingActivities, videos and recipes that engage kids in Healthy Living by including their favorite Disney Characters. kids' healthy lifestyle
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