Summary of HFA’s Convening for Research on Women with Bleeding Disorders

two women and child smiling

On October 28, 2022, thirty-two bleeding disorders (BD) community stakeholders met to learn about BD in women, discuss gaps in care and research for women, and read, discuss, and adopt the research agenda for women with BD created through Hemophilia Federation of America’s Females in Research Sharing and Translation (FIRST) project. Twenty-four stakeholders met in […]

Females in Research Sharing and Translation (FIRST) Project

Inherited bleeding disorders, such as hemophilia and von Willebrand disease, have long been under-recognized as causes for bleeding in females. Part of the problem with this under recognition has been the lack of opportunities for female engagement in research related these bleeding disorders. Through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington engagement award, the […]