Mid-Late 1990s: A Period of Action for Hemophilia Community

_____________________________________Title: At Annual Meeting, Hoping To Heal Hemophiliacs’ RiftSubtitle: Some Want Retribution For Aids; Others Want To Move On.By: Donna Shaw, INQUIRER STAFF WRITERDate: October 12, 1995Source: The Philadelphia InquirerThere is much that keeps Michael Carlin alive in the memories of his family.There is his poetry. His music. And there is his mother, Fern Carlin, […]

1990s-A Time for Action

NHF Congressional Update volume 2, number 1February 1995 Introduction Set For Late February! THE RICKY RAY HEMOPHILIA RELIEF FUND ACT OF 1995 This month marks a new beginning for our community… the Ricky Ray Hemophilia Relief Fund Act of 1995 is being introduced. This is a victory for us all and is happening because of the […]

1990s: Painful Questions and Heartbreaking Answers

Hemophilia Foundation Chief Knew Of Aids Risk In 1984By: Donna ShawDate: November 3, 1994Source: The Philadelphia Inquirer Blood-clotting drugs so improved his life that their possible contamination with the AIDS virus in the early 1980s was “an irrelevancy,” according to Donald S. Goldman, a former president and board chairman of the National Hemophilia Foundation. In a recent deposition, […]

1994- First Issue of Dateline Federation Published

Note: This is a transcribed copy of the first issue of our quarterly newsletter, Dateline Federation. A scanned .pdf of the issue is located here. New Kid on the Block The Hemophilia Federation Takes its Place in the Community Many, many times over the past eighteen months, we have been asked the proverbial question – just […]

1992- American Hemophilia/HIV Peer Association

ACTION NOW! American H/HIV Peer Association Volume 1, Number 1                                                                                           […]

1983-CDC Determines that AIDS is Spread Through Infected Blood

[glossary_exclude]Title: Prevention of Acquired Immune Deficiency Syndrome (AIDS): Report of Inter-Agency RecommendationsDate: March 4, 1983Source: Centers for Disease Control Morbidity and Mortality Weekly ReportSince June 1981, over 1,200 cases of acquired immune deficiency syndrome (AIDS) have been reported to CDC from 34 states, the District of Columbia, and 15 countries. Reported cases of AIDS include persons with Kaposi’s sarcoma […]

1989- COTT and the HIV/Peer Association Formed

In the late 1980s, many in the hemophilia community felt they were not getting the answers they sought. The Committee of Ten Thousand (COTT) and the Hemophilia-HIV/Peer Association were formed to demand more information and transparency while holding accountable those who allowed the HIV/AIDS epidemic to spread so widely through the community. Below is a […]

1985- Product Recalls Continue, Remain Cumbersome

December 13, 1985 AIDS UPDATE Medical Bulletin #34 Chapter Advisory #39 Factor IX Product Withdrawal Announced  On Friday, November 29, 1985, Hyland Therapeutics Division of Travenol Laboratories, Inc., initiated a voluntary market withdrawal of one lot of Factor IX Complex, PROPLEX (not heat treated) in the United States. The Withdrawal was based on identification of […]

1986- Thanks In Part to Media Attention, Ryan White Returns to School

Title: Media Credited in Return to School of Teen with AIDSBy: Associated PressDate: October 12, 1986Source: Indianapolis StarNews coverage of the battle by young AIDS victim Ryan White to return to school educated the public about the disease but sometimes sensationalized the story.  Ryan’s mother and his former principal said Saturday.“I truly believe the coverage that was given […]

1984: AIDS Continues to Spread Through the Hemophilia Community

Title: Update: Acquired Immunodeficiency Syndrome (AIDS) in Persons with Hemophilia Date: October 26, 1984Source: Centers for Disease Control Morbidity and Mortality Weekly ReportReports of hemophilia-associated acquired immunodeficiency syndrome (AIDS) in the United States were first published in July 1982 (1). Since then, the number of U.S. patients with underlying coagulation disorders who develop AIDS has increased each year. In […]