About

Lindsay Cox

Senior Manager for Advocacy & Outreach

Lindsay Cox is the Senior Manager for Advocacy & Outreach for the Hemophilia Federation of America (HFA). In her role at HFA, Lindsay leads and manages the Young Adult Advocacy Summit (YAAS), the Policy & Government Relations internship, and the annual Fly-In, Week of Advocacy, and Congressional Reception. She also leads the Public Affairs team’s advocacy education efforts, assists the HFA policy team with federal policy and regulatory efforts, and supports HFA member organizations on state advocacy and policy initiatives.

Prior to joining HFA in 2021, Lindsay served as the Director of Engagement and Strategic Innovation for the New York City Hemophilia Chapter and the Coalition Manager for the New York State Bleeding Disorders Coalition. As an experienced advocate based in Albany, New York, Lindsay was integrally involved in the passage of numerous pieces of legislation in New York State, including those regarding copay accumulator adjusters, anti-mandatory mail order, non-medical switching, pharmacy access, the creation of a Rare Disease Advisory Council, March is Bleeding Disorders Awareness Month, and more.

Lindsay has been a featured speaker and facilitator on topics such as coalition building, creative methods for advocacy training, storytelling techniques, and ways to connect community members and legislators. She holds Bachelors of Arts in Political Science and Philosophy, Politics, and Law from Binghamton University, graduating in 2017 with President’s Honors.