Page 7 - HFA Annual Report 2013
P. 7
CHoICe project

c hoice (community having oppor-
tunity to influence care equity) is a
three year cooperative agreement support-
ed by the centers for Disease control and
Prevention (cDc).

choice collects information through
an online and paper-based survey.
the choice survey col-
lects information regard-
ing health experiences, My Choice,
diagnosis, bleeding his- My Voice.
tory, use of treatment
products, insurance cover-
age, ability to attend school or work, overall
activity level, and patient satisfaction
of people who have a doctor-diagnosed
bleeding disorder and do not receive
care at a federally funded hemophilia
t
treatment center (htc). o learn
more about the choice survey visit:
www.hemophiliafed.org/programs/choice.

through this survey, hFA learns about
the needs and experiences of people who
are not utilizing an htc for care and
leverages this knowledge to improve
its services and support for families
nationwide.
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