Page 19 - HFA Annual Report 2015

“ We can’t effectively serve this community if we

don’t know who is a part of it. CHOICE is a crucial
step towards filling in the blanks in what we know
”
about people affected by bleeding disorders.
“ In the age of information, no knowledge Completed

is more important than an awareness of 665 surveys
our own health. ”
States represented
“ The CHOICE survey is our 48 in survey

chance to tell our story. ” Participants were

“ With the CHOICE survey, we have an outlet 22% non-HTC patients
to give our feedback and to be heard. ” Research projects to be

“ I fully support the CHOICE effort for a few reasons: 4 initiated in 2016 based on
CHOICE results
1) If the CDC is able to do more in the way of care for those
who do not attend HTCs, people like my dad (who died of
a head bleed after playing racquetball without factor on
board) might have a chance at better care, and 2) the more
people identified, the more can be served, so that women
like me can be diagnosed and treated at an earlier age.
That way others might be able to avoid some of the
permanent damage that my body incurred from untreated
bleeds over the years. When I support CHOICE, I’m looking
for my dad. I’m looking for myself. I’m helping the CDC
”
create a better future for people just like me.
“ I thought I knew everything.

I knew a lot—but not as much
as I’ve found out. ”