Page 13 - HFA Dateline 2013 Q4 Winter

nhibitor family Camp was founded in 2010 by Com- iprehensive Health education Services (CHeS), and is made possible through an educational grant provided by Novo Nordisk There are currently two programs held annually, both take place at camps I am always amazed by how much I learn from my inhibitor friends— that are part of the Serious fun Network (formerly ways to survive the tough times and ways to thrive in the good times known as The Hole in the Wall Camps): Spring camp More than anything, I am thankful not to be dealing with inhibitors is at Painted Turtle in Lake Hughes, CA; fall camp is alone—there’s an entire family willing to help me, just as I am will- at Victory Junction in Randleman, NC Because they ing to help them Indeed, if I was in the Wizard of oz movie clicking often cannot attend other camps due to their chal- my heels together, chances are that I might just wake up at inhibitor lenging medical needs, priority is given to children family camp n n who have a current measurable inhibitor titer Inhibi- Derek and his wife Krisdee live in Kaysville, Utah with their 3 chil- tor family Camp serves up to 25 families per ses- dren. Their two sons, Hayden (20) and Braxton (9) both have severe sion; registration is currently open for the April 11-14, hemophilia A, and Braxton has a long-standing inhibitor. Derek has 2014 program More information can be found at been highly involved in the hemophilia community as a board mem- www.comphealthed.com ber, a camp nurse, a camp director, an industry representative, and a Save One Life sponsor. He enjoys being outdoors and is currently training for his first Ironman triathlon. Winter 2013 | Dateline Federation Winter 2013 | Dateline Federation 13 13