Page 2 - HFA Dateline 2013 Q4 Winter

eXeCUtiVe CORneR offICeRS Matthew T Compton, President Tracy Cleghorn, Vice President Rocky Williams, Secretary douglas Hartsough, Treasurer season’s Greetings Paul Brayshaw, Past President HFA Family and Friends, PUBLICATIoNS CoMMITTee Margie Yancey, Vice Chair Jill Williams elcome to our last edition of Dateline in 2013 Please Barbara Chang Wenjoy this issue and know that we will be back in 2014 Lori Long to provide you with more great information and community MISSIoN stories! The Hemophilia federation of America is a national non-proft organization that assists Your Voice, Be Heard is a mantra HfA has held since our founding and we con- and advocates for the bleeding tinue to emphatically champion that each voice matters We use our voices to disorders community support each other, to challenge the status quo, and to insist on change when Dateline Federation is published four times needed In the celebratory spirit of the season, we express our heartfelt thanks a year by the HfA, 820 first St , Ne, Suite 720, to our avid writers and readers who utilize dateline to learn and share the voices Washington, dC 20002 Toll free Number: and experiences of our fellow community members Whether your role has been 800 230 9797; Local Number: 202 675 6984; fax: one of the voices heard this year or one of the community members listening, we 202 675 6983 Requests for permission to translate are glad to have you part of our family and/or reprint contents of Dateline Federation should be directed to the editor at We are so thankful to our physicians, pharmacies, and manufactures that support info@hemophiliafed.org. Dateline our community You provide us with the critical care, services, and therapies we Federation is available as a Pdf fle from the need HfA website at www.hemophiliafed.org. To our donors, we truly cannot do this without you! Through your giving, you dISCLAIMeR have personally helped people keep the lights on in their homes this year You The material provided in Dateline Federation have helped dads connect more fully with their children You have ensured our is provided for general purposes only HfA does community adult men are able to meet and support each other as they survive not give medical advice or engage in the practice of the pain of joint damage obtained in their youth before factor and prophylaxis medicine and recommends that you consult with your physician or local treatment center before were readily available, as well as the HIV and HCV co-infections from the dark beginning any form of treatment days in our not-so-distant past © 2013 Hemophilia federation of America finally, to our volunteers and members, know that you are incredible Volunteers All rights reserved give when they can, and we gratefully value each and every contribution CoNTRIBUToRS In Appreciation, Special thanks to HFA community members, staff and speakers who contributed to this issue. Rich Pezzillo, Communications director Shelly Mattson, editor Kristin Mitchell design, Graphic design Michael deGrandpre, Graphic design Matthew t. Compton Board President Gina Sierra, Photographer Melissa Lathlean, Photographer Amanda McCallum Jane forbes, RN odgen M forbes, ed, d derek Nelson Philip Hardt Kimberly Haugstad, MBA Sharon Ingram executive director Christine Bond Glenn Mones 2 Dateline Federation | Winter 2013