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PROJECT CALLS 2.0
C reating A lternatives to L imiting and L acking S ervices
By Katie Verb, JD, Staff Member
n August 2015, Hemophilia Federation of America of insurance issues encountered by the bleeding disorders
Ilaunched Project CALLS, an initiative designed to help community.
the bleeding disorders community collect data and stories In the first iteration of the Project CALLS survey, HFA
about how changes in insurance company policies are im- learned that the community was having more issues with
pacting the care of those with bleeding disorders. Since the their insurance than first imagined and decided to signifi-
launch of Project CALLS, HFA has spoken with more than cantly expand their data sets. In Project CALLS 2.0, HFA
50 members of the bleeding disorders community, allow- is gathering data about network adequacy, deductibles,
ing their voices to be heard. HFA started Project CALLS premiums, and balance billing in addition to information
in an effort to create a more accurate picture of the types about prior authorization and specialty pharmacies.
14 Dateline Federation | Fall 2016