Page 3 - HFA Dateline 2016 Q4 Winter
P. 3
In This Issue:
Assisting and advocating for the bleeding 4 Executive Corner
disorders community since 1994.
6 Gears for Good 2016
Issue 51 | Volume 16 | Winter 2016
EXECUTIVE LEADERSHIP
Board Chair
Tracy Cleghorn
President & CEO 8 Pedal Towards Good Health
Kimberly Haugstad, MBA
PRODUCTION TEAM 9 Words Matter
Editor
Kyle McKendall
10 HFA Policy, Post-Election
Copy Editor
Kit Salisbury
11 Okay, So What Can We Do?
Design & Layout
Kristin Mitchell Design, Inc.
12 Understanding Advocacy:
CONTRIBUTORS Reflections and Tips
M. Barusch from HFA’s 2016
Meg Bradbury, MS, CGC, MSHS
Angela Burton, MSW, Staff Member Advocacy Intensives
Meredith Clarke, Staff Member
Miriam Goldstein, JD, Staff Member
Ann LeWalk, Staff Member
Lori Long, Staff Member 13 Millennials Get Busy, Advocacy for Young Adults
Sharon Meyers, Staff Member
Lauren Neybert, MSW, Staff Member 14 HFA Celebrates 10 Years
Sarah Shinkman, Staff Member of Blood Brotherhood!
Deema Tarazi, JD, Staff Member
Katie Verb, JD, Staff Member
Nick Vosburg
Randy Vosburg
The information printed in 16 Celebrating the Past and Making Memories for the Future,
Dateline Federation is provided for HFA Hosts Blood Brotherhood Camp Out
general purpose use. HFA does not give
medical advice or engage in the practice of
medicine and recommends that you consult 19 Bringing Light and Hope
with your physician or local treatment center
before beginning any form of treatment. 20 Adopting the Unadoptable: Our Family’s Journey into the
Requests for permission to translate or Bleeding Disorders Community
reprint contents of Dateline Federation should
be directed to info@hemophiliafed.org.
22 Project CALLS: Q4 Report
820 First Street NE, Suite 720
Washington, DC 20002 23 Make HFA Your Charity of Choice
800.230.9797
info@hemophiliafed.org
25 Genetic Counseling: What You Never Knew You Needed to Know
©2017 Hemophilia Federation of America.
All rights reserved.
Winter 2016 | Dateline Federation 3