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Announcing HFA’s Inaugural
Young Adult Advocacy Summit: Fall 2017
By Sarah Shinkman, Staff
Since 2014, HFA has offered program- Activities will include:
ming tailored to young adults, pro-
viding education and social support for • Intensive advocacy training on how larger policy issues affect the
those living with bleeding disorders. patient community at large, including people with bleeding disorders
We’re excited to announce the Young
Adult Advocacy Summit, a national • I ntensive communications training about how the stories of the
event taking place this fall at HFA’s na- bleeding disorders community fit in the broader patient narrative
tional headquarters in Washington, DC.
HFA will bring together young adults, • Coalition-building training
ages 18 through 30, from multiple pa-
tient communities, including bleeding • State and local advocacy training
disorders, for the three-day advocacy
summit. Participants will develop advo- • Sharing stories and challenges with other young adults living
cacy, coalition-building, and leadership with chronic disorders
skills through interactive training with
experts in policy, advocacy, and commu- • Building networks across multiple patient advocacy groups to
nications. benefit activism at the local level
• Congressional Hill meetings to practice skills
HFA has the capacity for 15-20 young adults with diagnosed bleeding disorders and
other chronic disorders to attend the Young Adult Advocacy Summit. Registration
will close once we reach capacity. All travel, lodging and programming fees will be
covered for the selected participants.
Want to attend?
Register on HFA’s website, www.hemophiliafed.org/programs/youngadults. Be sure to
follow HFA on Facebook, Twitter, and Instagram for news and updates. For more infor-
mation, contact Sarah Shinkman, Advocacy and Outreach Manager, at s.shinkman@
hemophiliafed.org.
Summer 2017 | Dateline Federation 7
