Page 3 - HFA_Dateline_2018_Q3_Fall
P. 3

IN THIS ISSUE:

   2 Executive Corner
   4 A Legacy to Learn From
            HFA to honor bleeding disorders
            history at 2019 Symposium

   7 A Better Design                              ]
            Patient’s voice influences the
            design of clinical trials

10  The Psychology of Pain                        34  Campout Sparks
                                                  36  Unparalleled Brotherly Bond
    Understanding psychological and
    physiological changes in the brain                Getting to Know HFA’s
    caused by pain                                    Newest Staff

15  Clearing Away the Smoke                       HAPPENING HIGHLIGHTS
23  Surrounding Medical Marijuana                    Scholarship Winners. . . . . . . . . . . . . . . . . . . . . . . . . .  6

    On the Other End of the Needle                ADVOCACY PROFILE
                                                     Project CALLS Report . . . . . . . . . . . . . . . . . . . . . 20-21
28  Taking An Alternate Route                        Project CALLS Insurance Challenges . . . . . . . . . .  22
32                                                   HFA Issues Joint Statement . . . . . . . . . . . . . . . . . .  22
    Blood brother shares his experiences             That’s a Wrap. . . . . . . . . . . . . . . . . . . . . . . . . . . .  24-25
    with medical marijuana
                                                  SANGRE LATINA
    From Condemned to                                Advertencia a los inmigrantes sobre la
    Passionate Advocate                              marihuana médica y legalizada . . . . . . . . . . . . . . . . 31

    TEACH Immersion participant                                         INSPIRING IMPACT
    learns to embrace advocacy                                            Pulling Out of the Muck. . . . . . . . . . 16
                                                                          Building Future Cyclists. . . . . . . . . . 19

                Issue 58 | Volume 18 | Fall 2018  ON THE COVER. A lot can happen to a body, mentally and physically, when someone experiences chronic pain.
                                                  Handling the pain can feel like a heavy burden. We explain what happens in the body and brain, how to understand
       Understanding                              opioids, other pain relief substances and approaches to managing pain.
         Chronic Pain,
        Psychological                             ARTIST: MICHAEL BISHOP. Bishop is a hemophilia patient and community member from Ohio,
                                                  who works full-time for HFA as our Web Coordinator and in-house artist.
    Changes, Opioid
    Dependency and

           Alternatives

                               INSIDE:
                    AnnualCharity

                       Bicycle Ride
                  Isn’t Just About

                        Fundraising
                                         page 14

                  Blood Brother’s
                          First-hand

                 Experience with
              Medical Marijuana

                                        page 26

	                                                     Fall 2018 | Dateline Federation	                                                                              3
   1   2   3   4   5   6   7   8