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IN THIS ISSUE:
2 Executive Corner
4 A Legacy to Learn From
HFA to honor bleeding disorders
history at 2019 Symposium
7 A Better Design ]
Patient’s voice influences the
design of clinical trials
10 The Psychology of Pain 34 Campout Sparks
36 Unparalleled Brotherly Bond
Understanding psychological and
physiological changes in the brain Getting to Know HFA’s
caused by pain Newest Staff
15 Clearing Away the Smoke HAPPENING HIGHLIGHTS
23 Surrounding Medical Marijuana Scholarship Winners. . . . . . . . . . . . . . . . . . . . . . . . . . 6
On the Other End of the Needle ADVOCACY PROFILE
Project CALLS Report . . . . . . . . . . . . . . . . . . . . . 20-21
28 Taking An Alternate Route Project CALLS Insurance Challenges . . . . . . . . . . 22
32 HFA Issues Joint Statement . . . . . . . . . . . . . . . . . . 22
Blood brother shares his experiences That’s a Wrap. . . . . . . . . . . . . . . . . . . . . . . . . . . . 24-25
with medical marijuana
SANGRE LATINA
From Condemned to Advertencia a los inmigrantes sobre la
Passionate Advocate marihuana médica y legalizada . . . . . . . . . . . . . . . . 31
TEACH Immersion participant INSPIRING IMPACT
learns to embrace advocacy Pulling Out of the Muck. . . . . . . . . . 16
Building Future Cyclists. . . . . . . . . . 19
Issue 58 | Volume 18 | Fall 2018 ON THE COVER. A lot can happen to a body, mentally and physically, when someone experiences chronic pain.
Handling the pain can feel like a heavy burden. We explain what happens in the body and brain, how to understand
Understanding opioids, other pain relief substances and approaches to managing pain.
Chronic Pain,
Psychological ARTIST: MICHAEL BISHOP. Bishop is a hemophilia patient and community member from Ohio,
who works full-time for HFA as our Web Coordinator and in-house artist.
Changes, Opioid
Dependency and
Alternatives
INSIDE:
AnnualCharity
Bicycle Ride
Isn’t Just About
Fundraising
page 14
Blood Brother’s
First-hand
Experience with
Medical Marijuana
page 26
Fall 2018 | Dateline Federation 3