Page 9 - HFA Dateline 2022 Q3 Fall

MEMBER ORGANIZATION SPOTLIGHT

Eastern Pennsylvania Bleeding Disorders

Foundation

The Eastern Pennsylvania Bleeding Disorders Foundation Pilacik knows these programs will be more successful than
is unique in that it has six hemophilia treatment centers her rocky start back in May, which she can laugh about
(HTCs) in its boundaries, including four HTCs in now. The foundation had planned a dinner reservation for
Philadelphia! The foundation serves 41 of the 67 counties Mother’s Day weekend at the world-renowned Longwood
of Pennsylvania. Gardens. As Pilacik explained: “Well, it
started raining on Friday and did not
Executive Director Sarah Ross Pilacik stop until late Saturday night. It was cold
started her role in March 2022 and is and windy and just terrible. Some brave
looking forward to a busy fall. “I am community members went, but I ended up
most excited about getting to know returning the majority of the tickets.”
the patient community and their
families,” she said.

The fall programs include Adventure Sports, Family Camp,
Annual Meeting, Wheels for the World, 1Walk, Women’s
Retreat and some educational
programming events with industry.

Feel free to tear out this activity sheet.

FALL 2022 9