Page 15 - HFA Annual Report 2015
P. 15
“ As women, we need to be
vigilant, educated, and vocal
about hemophilia. ”
Downloads on HFA’s Blood Sisterhood
“ HFA gave me the strength 750 Mobile app (launched in March 2015)
and the security to have my
daughters get tested. ” 388 in program
Blood Sisters enrolled
“ When I found out that both Blood Sisters attended
[my daughters] had von Willebrand
disease, it was not as scary as I 234 local sessions
thought it would be. I had a world
of information and people to help Women from 26 states participated in the
” ary 2015) to offer women with bleeding disorders or
us get through it. 53 “Share Your Story” (launched in Febru-
“ At my first Blood Sisterhood session, symptoms the opportunity to tell HFA about the care
they have received
the room was filled with women of all
ages and personalities, coming together
and bonding over one common goal—to Local Blood Sisterhood Sessions hosted via
share laughter, education, and support 23 16 partnering HFA Member Organizations
in the company of someone who had
” 6 adults ages 18-35 with archived recordings on
walked in their shoes. Young Adult Hangouts hosted live for young
HFA’s Resource Library
New Educational
6 Modules developed
Educational Online
1 Toolkit developed
Educational Webinar hosted live with archived
1 recording on HFA’s Resource Library
