Page 18 - HFA Annual Report 2015

Year in Review | CHOICE Project

s a result of a cooperative agreement with the Centers for Disease Control and
APrevention (CDC), HFA ran the CHOICE (Community Having Opportunity
to Influence Care Equity) Project from October 2011 to September 2015. Through
the CHOICE survey, HFA collected data from non-HTC patients on demographics,
insurance coverage, socio-economic status, health services utilization, education
and employment status, diagnosis, number and location of bleeds, treatment type,
treatment products used, vaccination status, infectious disease status, inhibitor
status, joint function and disease, invasive orthopedic procedures, and conditions
of aging.
Using the data from the CHOICE Project as a springboard, HFA will seek to
engage in research projects in 2016. Each research project will be undertaken
with the goal of using the end results to improve the lives of our community,
including their health outcomes and personal advocacy capabilities, among other
advancements. Internally, HFA’s research endgame is the unceasing improvement
of our programming and advocacy efforts. We will continue to use the Participatory
Action Research Method as a cornerstone of our efforts to involve patients in the
research process as their engagement proved invaluable to CHOICE and to making
the Project a success. HFA’s re-
search activities will give com-
munity members a voice not
only in the type of inquiries we
perform but on the research
process itself through their
meaningful participation.