Page 11 - HFA Annual Report 2014
P. 11
THE PAST AND PRESENT






worked tirelessly to ensure that Americans have access to
affordable health care. This year’s winners: US Senator Bill
Cassidy of Louisiana, Congresswoman Diana DeGette of Dear Addy,
Colorado, Congressmen Cedric Richmond of Louisiana and
Congressman Fred Upton from Michigan. Thank you, one I have a question about…
and all!
At year-end, HFA received survey responses from near- Some of YOUR issues tackled by
ly 400 community members who participated in our Dear Addy this year:
CHOICE (Community Having Opportunity to Influence • Health care choices
Care) Project, a cooperative endeavor supported by the
Centers for Disease Control and Prevention (CDC). The • Maximum out-of-pocket expenses
project included a survey with questions about diagnosis, • Open enrollment
bleeding history, complications, treatment, insurance cov-
erage, and quality of life and care. Together with the CDC, • Major medical vs pharmacy coverage
we will use the CHOICE survey data to examine the health • Self-insured plans
status of individuals in the community who do not receive
care from federally-funded Hemophilia Treatment Centers • Employee disclosure
(HTCs). Independently, we will use the CHOICE survey • Lifetime vs annual caps
data to identify issues in care and care access reported by • Privacy protections
the survey respondents to improve our advocacy efforts,
program offerings, and to develop new offerings to serve
our community more effectively.
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