Page 15 - HFA Annual Report 2014
P. 15
“ I decided I had to know as much as possible. It was my responsibility to learn
as much as my HTC team knew about hemophilia. I had to earn my own ‘degree’ to
be an expert about my child. I read books, asked questions, and attended meetings.
I jumped into volunteering in the hemophilia community and absorbed as much
information as possible. It was a crash-course in all things hemophilia.”
– excerpt from Infusing Love: A Mom’s View blog, 2014
M others of children with In 2013, HFA launched a weekly blog, Infusing Love: A
bleeding disorders have Mom’s View. This blog had nearly 1,200 shares and a total
traditionally taken the lead in reach of 154,700 people in its first year! Infusing Love was
the care of their children. In re- the catalyst for the Moms in Action focus of our Families
cent years they have turned to on-line resources to con-Program that offered on-line education via four national
nect with others and share their experiences and insights, webcasts and delivered joint presentations to moms and
drawing inspiration from other moms in the same situation. dads at six local meetings with more than 120 people in
attendance.
as much as my HTC team knew about hemophilia. I had to earn my own ‘degree’ to
be an expert about my child. I read books, asked questions, and attended meetings.
I jumped into volunteering in the hemophilia community and absorbed as much
information as possible. It was a crash-course in all things hemophilia.”
– excerpt from Infusing Love: A Mom’s View blog, 2014
M others of children with In 2013, HFA launched a weekly blog, Infusing Love: A
bleeding disorders have Mom’s View. This blog had nearly 1,200 shares and a total
traditionally taken the lead in reach of 154,700 people in its first year! Infusing Love was
the care of their children. In re- the catalyst for the Moms in Action focus of our Families
cent years they have turned to on-line resources to con-Program that offered on-line education via four national
nect with others and share their experiences and insights, webcasts and delivered joint presentations to moms and
drawing inspiration from other moms in the same situation. dads at six local meetings with more than 120 people in
attendance.
