Page 11 - HFA Annual Report 2015

Year in Review | Advocate Fly-In

and Congressional Reception

n 2015, HFA held its 2nd annual Advocate Fly-In and Congressional Recep-
Ition, bringing in community members from all over the country for targeted
meetings with their representatives. Representatives are sought out based
on their involvement in particular legislation, their memberships on specific
committees, and/or their willingness to support our community, making these
meetings incredibly effective. Specific policy topics and messaging are devel-
oped in advance, preparation of constituents is conducted before the meet-
ings via an advanced webinar as well as at a briefing the night before, and
continued coaching is provided after the Fly-In as well. Following the Fly-In, Attendees to
community members are given the opportunity to mingle with Congressional 150 Congressional
staff and continue to share their stories at our Congressional Reception where Reception
we honor members of Congress who have championed patient issues that year.
Letters submitted
80 electronically in
support of Patients’ Access to
Treatment Act (PATA) during
corresponding Virtual Hill Day

Meetings with members
18 of Congress

“ The hemophilia community should never doubt that it 11 attendees exposed to
Community member
”
has the strength to make big things happen.

“ [The other participant’s stories] enlightened me, and Capitol Hill Advocacy

surely the legislative staff as well, on how much lawmaking
Issues advocated for
truly impacts the bleeding disorders community and holds 4 (3rd party payers, PATA,
the potential to make a big difference in many peoples’ Medicare Part D Appeals Act,
” funding for Executive Agencies)
lives.