Page 14 - HFA_Dateline_2014_Q2_Summer
P. 14
1990s 1990 The hemophilia patient community
1992
Ryan White dies
The 1990s are a period of at the age of 18. begins to independently ask their
action in the hemophilia own questions and galvanize. Local
community. National hemophilia organizations, COTT,
grassroots associations and others seek answers to why they
like the Hemophilia-HIV were given misinformation and to
Peer Association, Com- hold accountable those who failed to
mittee of Ten Thousand prevent the spread of HIV/AIDS
to people with hemophilia.
(COTT), and Hemophilia
Federation of America 1992
(HFA) form to address Ricky Ray, one of
the unheard needs of the three brothers
community. Recognizing infected with
their role in the failure of HIV/AIDS, dies
the public heath system at age 15.
to protect the hemophilia
community, the National
Hemophilia Foundation
undergoes aggressive re- 1990 1992 1994
organizational efforts, with
new leadership NHF unites
with the grassroots commu- 1994
nity to push for legislative Hemophilia Federation of America forms as a sub-group
action and strident blood of COTT in 1993 and becomes independent in 1994.
safety regulations. During
this time, the gay commu- HFA bridges the gap between the advocacy
nity supports those with efforts that COTT is working on, and is a
hemophilia and HIV/AIDS, place of education, advocacy, and support for
and strong coalitions form. families living with a bleeding disorder. HFA
After the release of the continues today to serve as the voice of the community.
Institute of Medicine’s
1994
report, “HIV and the Blood Litigation
Supply,” in 1995 a grass- against the drug
roots legislative effort manufacturers
develops, culminating in dominates most of the 1990s. Some patients ile individual
the passage of the Ricky cases, while others are part of a large class action suit.
Ray Hemophilia Relief Others choose not to pursue a settlement.
Fund Act of 1998.
14 Dateline Federation | Summer 2014
1992
Ryan White dies
The 1990s are a period of at the age of 18. begins to independently ask their
action in the hemophilia own questions and galvanize. Local
community. National hemophilia organizations, COTT,
grassroots associations and others seek answers to why they
like the Hemophilia-HIV were given misinformation and to
Peer Association, Com- hold accountable those who failed to
mittee of Ten Thousand prevent the spread of HIV/AIDS
to people with hemophilia.
(COTT), and Hemophilia
Federation of America 1992
(HFA) form to address Ricky Ray, one of
the unheard needs of the three brothers
community. Recognizing infected with
their role in the failure of HIV/AIDS, dies
the public heath system at age 15.
to protect the hemophilia
community, the National
Hemophilia Foundation
undergoes aggressive re- 1990 1992 1994
organizational efforts, with
new leadership NHF unites
with the grassroots commu- 1994
nity to push for legislative Hemophilia Federation of America forms as a sub-group
action and strident blood of COTT in 1993 and becomes independent in 1994.
safety regulations. During
this time, the gay commu- HFA bridges the gap between the advocacy
nity supports those with efforts that COTT is working on, and is a
hemophilia and HIV/AIDS, place of education, advocacy, and support for
and strong coalitions form. families living with a bleeding disorder. HFA
After the release of the continues today to serve as the voice of the community.
Institute of Medicine’s
1994
report, “HIV and the Blood Litigation
Supply,” in 1995 a grass- against the drug
roots legislative effort manufacturers
develops, culminating in dominates most of the 1990s. Some patients ile individual
the passage of the Ricky cases, while others are part of a large class action suit.
Ray Hemophilia Relief Others choose not to pursue a settlement.
Fund Act of 1998.
14 Dateline Federation | Summer 2014
