Page 13 - HFA_Dateline_2014_Q2_Summer
P. 13
1985
Letters from the National
Hemophilia Foundation
continue to reafirm the
recommendation that
patients use clotting
factor even as product
recalls are issued.
1985
In the midst of fear and
confusion, Ryan White and his family from Indiana emerge as
spokespersons for those living with hemophilia who contracted
HIV/AIDS, especially after Ryan is denied entry to his school.
1984 1985 1986 to 1988 1989
1989
1986 During this period, many in the
Like Ryan White, three hemophiliac brothers are hemophilia community felt they were
denied entry into their Florida school. The Ray broth- not getting the answers they sought.
ers take their case to The Committee of Ten Thousand
court and are awarded (COTT) and Hemophilia-HIV/PEER
their right to return to Association are formed to demand
school. Shortly after more information and transparency for
this decision, their those who have contracted HIV/AIDS
home mysteriously from tainted blood products.
burns to the ground.
The media coverage COTT Committee of Ten Thousand
following the burning 1989
of their family home The irst World Hemophilia Day is
is often considered a observed on April 17 to
signiicant event in increase awareness of
the history of HIV/ hemophilia and other
AIDS in the United bleeding disorders.
States.
Summer 2014 | Dateline Federation 13
Letters from the National
Hemophilia Foundation
continue to reafirm the
recommendation that
patients use clotting
factor even as product
recalls are issued.
1985
In the midst of fear and
confusion, Ryan White and his family from Indiana emerge as
spokespersons for those living with hemophilia who contracted
HIV/AIDS, especially after Ryan is denied entry to his school.
1984 1985 1986 to 1988 1989
1989
1986 During this period, many in the
Like Ryan White, three hemophiliac brothers are hemophilia community felt they were
denied entry into their Florida school. The Ray broth- not getting the answers they sought.
ers take their case to The Committee of Ten Thousand
court and are awarded (COTT) and Hemophilia-HIV/PEER
their right to return to Association are formed to demand
school. Shortly after more information and transparency for
this decision, their those who have contracted HIV/AIDS
home mysteriously from tainted blood products.
burns to the ground.
The media coverage COTT Committee of Ten Thousand
following the burning 1989
of their family home The irst World Hemophilia Day is
is often considered a observed on April 17 to
signiicant event in increase awareness of
the history of HIV/ hemophilia and other
AIDS in the United bleeding disorders.
States.
Summer 2014 | Dateline Federation 13
