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1930s and


1940s 1959

Mary M. Gooley assembles one of
People living with hemo- the irst comprehensive care teams
philia struggle with health in Rochester, NY to help families
problems and only have affected by hemophilia.

a median life expectancy
of 27 years. Treatment is
limited to transfusions 1959

of whole blood and icing 1958 This era marks a time of research
the joints. In 1949, the US Life expectancy into effective treatment for
Army concludes soldiers for those living hemophilia as whole blood continues
to be the only effective treatment.
using pooled plasma have with hemophilia
is only 27 years
a higher incidence of old in the 1950s.
jaundice. Later research
proves that jaundice was

a symptom of hepatitis.
The National Hemophilia
Foundation is founded

in 1948 by Robert Lee and 1958 1959 1963 1964
Betty Jane Henry.

1950s and 1963


1960s During the early 1960s, hemophilia is often referred to
as the “Disease of Kings” and “Bleeders Disease.”
Improvements in 1963

blood transfusions in The World Hemophilia Federation is formed.
World War II led to

hemophilia patients
being able to get fresh
frozen plasma. The World
Federation of Hemophilia

is established in 1963.
After cryoprecipitate is
developed in 1964 by

Dr. Judith Graham Pool,
life expectancy rises
to 39.7 years.


8 Dateline Federation | Summer 2014
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