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Assisting and advocating for the bleeding In This Issue:
disorders community since 1994.
4 Executive Corner
Issue 54 | Volume 17 | Fall 2017 5 N ational AIDS Grove Memorial

EXECUTIVE LEADERSHIP Hemophilia Dedication

Board Chair 6 Federal Step Therapy Legislation Introduced
Tracy Cleghorn 8 Storytelling for Advocacy

President & CEO 11 PRIDE Project Training: What are PCORI and CER
Kimberly Haugstad, MBA
13 Inhibitor Testing and the Road to Prevention
PRODUCTION TEAM
16 Pain Management and Opioid Addiction
Editor
Kyle McKendall 19 Your Student has a Bleeding Disorder… Now What?

Copy Editor 21 Rural Life – Going the Distance and Narrowing the
Kit Salisbury
Gaps by Developing Connective Capacity
Design & Layout
Kristin Mitchell Design, Inc. 25 D evelop a Healthy Eating Style

CONTRIBUTORS That’s Right for You

Fiona Bethea, MPH 28 Sangre Latina
Martha Boria, Staff
Meredith Clark, Staff 30 The First Directory of Clinics and Services for Women and Girls
Melanie Croce-Galis, RN, MPH
Kerry Funkhouser, EdD 34 Member Organization Executive Director Spotlight:
Miriam Goldstein, Staff
Carrie Koenig, Staff Kelly Waters of the Virginia Hemophilia Foundation
Wendy Owens, Staff (VHF)
Jill Packard
Sarah Shinkman, Staff Fall 2017 | Dateline Federation 3
Christie VanHorne, M.Ed, MPH
Sonji Wilkes, Staff

The information printed in
Dateline Federation is provided for
general purpose use. HFA does not give
medical advice or engage in the practice of
medicine and recommends that you consult
with your physician or local treatment center
before beginning any form of treatment.

Requests for permission to translate or
reprint contents of Dateline Federation should
be directed to info@hemophiliafed.org.

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