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HAPPENING HIGHLIGHTS

Pilot Program Aims to Improve
Infusion Tracking

The National Hemophilia Foundation has announced a two-year pilot program
aimed at improving the efficacy of patient infusion logs and reporting through
a partnership with Audaire Health Inc., specialty pharmacies and hemophilia
treatment centers.
Audaire Health is providing an easy-to-use data tracking tool that can instantly
record infusions, bleeds and other adverse effects to the patient’s care team
and specialty pharmacy. NHF hopes the program will show the benefit of not
only patient adherence, but the cost savings associated with an integrated data
system that operates at multiple touchpoints along the patient’s care. NHF will
present initial findings of the program this fall.

TV Series Addresses Tainted Blood Scandal

The Canadian Broadcasting Corporation launched "Unspeakable," a TV series
which tells the true story through the eyes of two families caught in the
tainted blood scandal of the 1980s. The series follows an incredible, decades-
long saga with people struggling to survive, find compensation and deal with
bureaucracy.
"Unspeakable" is based on emotionally-charged personal accounts as well as
Andre Picard’s “Gift of Death: Confronting Canada’s Tainted Blood Tragedy,”
Vic Parson’s "Bad Blood: The Tragedy of the Canadian Tainted Blood Scandal,"
and the Royal Commission of Inquiry into the Canadian Blood Tragedy lead by
Justice Horace Krever.
Binge watch the eight-part drama at www.sundancetv.com/shows/
unspeakable or www.cbc.ca/unspeakable/.

It’s Time for Summer Sports

Baseball, softball, soccer, golf, swimming. It's the time of year when summer
sports are in full swing! Our Sports Toolkit has great tips for making it through
the season, including a printable card to provide valuable bleeding disorders
information about a child for their coach. Check out bit.ly/HFASportsToolkit.

Back to School Toolkit

While school is over in most parts of the country, it’s never too late to prepare
for going back to school in the fall. Our Back to School Toolkit features tools
intended to help educate the educators and relieve some stress in sending a

child back to school. Check out bit.ly/HFABacktoSchoolToolkit. S

4 DATELINE FEDERATION < www.hemophilafed.org