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IN THIS ISSUE:
ARTICLES Summer intern, Tameelah,
visits with friends at HFA’s
4 Advocacy and policy issues for the bleeding Young Adult Advocacy
disorders community don’t stop when a global Summit in 2019.
pandemic hits. HFA got creative and turned summer
internships virtual. Meet HFA’s summer interns. 4
8 An HFA board member brings his knowledge of 8
goal setting to the bleeding disorders community.
6
14 Those with bleeding disorders have not been
spared from the impact of COVID-19. Learn about
the resources available to the community.
19 Quarterly Project CALLS Report — Learn about
the insurance issues bleeding disorders patients
and their families are facing.
20 HFA dives into a recent case of a young patient
who aged out of his parent’s insurance and the
obstacles he experienced.
26 Hemophilia organization hopes to change
current Medicare reimbursement that leads
aging hemophilia patients struggling to
enter nursing facilities.
SPECIAL FEATURES
6 Inspiring Impact
• D elves for Donors — An annual fundraising event
has its best year yet
10 Advocacy Profile
• HFA’s Web Specialist found himself in the hospital,
5 far from his usual HTC, with hematologists unfamiliar
with his typical care. It was up to him to stand up
for himself!
ON THE COVER.
HFA's Web Specialist, Michael Bishop, found himself in the hospital, far from his usual HTC, with hematologists unfamiliar
with his typical care. It was up to him to stand up for himself and he shares his story in this issue of Dateline on page 10.
Photo credit: Michael DeGrandpre
SPRING 2020 3
