Page 4 - HFA Dateline 2021 Q3 Fall

Donate Today
As you know, living
with a bleeding
disorder presents a
lifelong series of “what
if”s. These unknowns
can be very scary for
a new parent or a
seasoned community
member. Bleeding
disorders can bring health
issues, frequent hospital
trips, as well as a battery of
situations forcing families
Join Team Resilience and runDisney! to make tough choices.
runDisney has announced that its 2022 races will be held in- The good news is
person at Walt Disney World, so Team Resilience will be a part that for more than 25
of the fun! Whether you are a beginner or a veteran runner, you years, HFA has been a
will truly enjoy the sites and magic of Disney as you run through support system to hold
Walt Disney World.
up families after a “what
if” becomes a reality. HFA
You’ll also be raising awareness of bleeding disorders and rare is a comforting resource
genetic diseases and raising funds for the Hemophilia Federation where families can get
of America (HFA) Helping Hands program. As you run, you’ll answers—answers that
be helping families keep their homes if they miss work for bring relief and stability to
hospitalizations or you’ll be providing them with durable medical a family struggling to adapt
supplies or travel expenses to medical appointments.
to their reality. Our Helping
Hands program was
Team Resilience will take part in the Walt Disney World Marathon designed specifically to
weekend January 5–9 and the Princess Half Marathon weekend help community
February 25–27. Visit www.hemophiliafed.org today to sign up.
members who are
experiencing a financial
crisis with basic living
expenses. Helping Hands is
there for our families.
Participate in Our Virtual Hill Day!
Now, we need your
HFA’s annual Patient Fly-in and Congressional Reception has
been reimagined for 2021! You can participate from the comfort help. Would you consider
of your home the week of November 15–19. Join us as we meet making an unrestricted gift
with key congressional offices to explain why expanded subsidies to Hemophilia Federation
provided in the American Rescue Act should be made permanent of America to help a family
and how co-pay accumulators adjustor programs harm patients. with emergency assistance
Mark your calendar to spend less than two minutes using HFA’s or to purchase a necessary
Legislative Action Center to write, call or tweet your legislators medical item? Learn more
about issues important to the bleeding disorders community. about how you can help
by visiting
www.hemophiliafed.org.
4 DATELINE FEDERATION < www.hemophiliafed.org