Page 5 - HFA Dateline 2021 Q3 Fall

Hemophilia Association of New York Inc.

The Hemophilia Association of New York (HANY) Inc. will
celebrate its 70th birthday in 2022, serving thousands of
people with bleeding disorders over the years. When the
pandemic hit in 2020, the organization knew it had to step
up to provide financial assistance to struggling families. In
the first year of the pandemic, HANY distributed $40,000 in
assistance.

“Most of our clients are introduced to us through referrals
of the social workers of the hemophilia treatment centers
(HTCs),” Executive Director Linda Mugford said. “Our client
support services are very robust, even during the COVID-19
pandemic. I like to say that HANY rarely says ‘no’ to a request
for help.”

HANY’s assistance program continues, providing support for
MedicAlert IDs, transportation for camp and medical visits,
co-pays and deductibles, and other
things deemed necessary for a client’s
well-being. HANY also has a scholarship HEMOPHILIA
program, awarding $55,500 in 2021 ASSOCIATION OF
to clients enrolled full time in a college NEW YORK INC. FACTS
or university. Furthermore, since 1965
HANY has given more than $25 million to Started in 1952
support bleeding disorders research.
Serves the 14 downstate
“Our longevity makes HANY unique, counties of New York
along with our focused vision of making
the lives of those with bleeding disorders 750 people served
easier to manage,” Mugford said. “We
are honored to work closely with the five Most successful program:
New York downstate HTCs.” The annual Steven L
Margolies, MD,
Mugford also wanted to acknowledge Educational Conference
Tyshawn Constantine, HANY associate
director, who implements
the organization’s ideas and oversees
the various programs and requests.
When asked for advice for other
organizations to achieve such
success. Mugford quoted
Constantine, who likes to say:
“Let’s focus on what we do; make
it better—it’s quality, not quantity.”

“As tempting as it is to start doing
many and various programs,” Mugford
said, “you must be thoughtful of the
needs of the community and their time. If you
develop something that works, make it better.” FALL 2021 5