Page 4 - HFA Dateline 2022 Q1 Spring
P. 4

IN THIS ISSUE



        DEPARTMENTS


           2    Allie Ritcey, chair of the HFA Board of Directors, is happy        Assisting, educating, and advocating
                 Executive Corner

                spring has arrived.                                                for the bleeding disorders
                                                                                   community since 1994.
           6    Resources are available to help with bleeding disorder             Volume 23 • Issue 1 • Spring 2022
                 Happening Highlights
                management and to provide a community.                             EXECUTIVE LEADERSHIP
                                                                                   Board Chair • Allie Ritcey
           7    Learn how the Bleeding Disorders Alliance of North Dakota          EdD, CFRE
                 Member Organization Spotlight                                     President & CEO • Sharon Meyers,

                has been building community during the pandemic.
                                                                                   PRODUCTION TEAM
           8                                                                       Managing Editor • Melanie
                 Inspiring Impact                                                  Editor • Meghan Lawton
                Robbie Klein designs cleats for Patriots quarterback Mac Jones.
                                                                                   Padgett Powers
         10     Welcome these four additions to the HFA team.
                 Get to Know HFA’s Staff                                           Design & Layout • Brad Latham
                                                                                   Contributing Writers
                                                                                   Cheryl Alkon, Freelance Writer
                                                                                   Heather E. Case, MEd, HFA Staff
        ARTICLES                                                                   Lindsay Cox, HFA Staff
                                                                                   Dana Kuhn, Community Member
         12     Past HFA interns tell us what they’ve been up to.                  The information printed in Dateline
                 Where Are They Now?                                               Ann B. LeWalk, MA, HFA Staff

                                                                                   Federation is provided for general purpose
         14     A friend of Val Bias explains what a huge impact Bias had on       engage in the practice of medicine and
                 In Memory of Val Bias                                             use. HFA does not give medical advice or

                the bleeding disorders community.                                  recommends that you consult with your
                                                                                   physician or local treatment center before
         16     Alex Dowsett has been a professional cyclist—with severe           beginning any form of treatment.
                 Elite Level
                hemophilia A—for 14 years.                                         Requests for permission to translate
                                                                                   or reprint contents of Dateline
        24      Join Team Resilience in 2022!                                      Federation should be directed to

                                                                                   info@hemophiliafed.org.
                Join HFA’s peer-to-peer endurance fundraising team for its
                best year yet.
                                                                                   999 N. Capitol Street NE • Suite 301
        26      Introducing the HFA Education Team                                 Washington, DC 20002

                                                                                   202.675.6984
                The newly renamed team takes a holistic approach to creating
                tailored, accessible education.                                    info@hemophiliafed.org
        28      Research Revealed                                                  ©2022 Hemophilia Federation of America.

                                                                                   All rights reserved.
                Congratulations to genetic counselor Caylynn Carls, MS, CGC,
                first-place winner of the 2021 HFA Annual Symposium                Connect with us on social media
                Poster Session.                                                    for daily posts and updates
                                                                                   about what’s happening at HFA.
        30      HFA Creates Network of Mental Health

                Ambassadors
                Mental Health First Aid trainings will continue throughout 2022.
        32       Global Treatment in the Pandemic

                How has COVID-19 affected treatment, access and awareness
                in the bleeding disorders community?

        4      DATELINE FEDERATION < www.hemophiliafed.org
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