Page 9 - HFA Dateline 2022 Q1 Spring

I’m playing for him because he can’t
play football. It seems like he’s just a
real fighter.”

Kayla also wants the public to
know “while we have had very sad
moments, we are not a sad story.”
She added, “The more you can raise
awareness of any rare disease at
a local or national level or in your
neighborhood, it can do wonders
for building understanding of rare
diseases, including hemophilia.
... There’s no negative in doing
advocacy and awareness work,
especially when it’s highlighted in
such a positive way.”

Left: Robbie enjoying winter sledding. Top: the Klein family:
Kayla and Joel with their sons, Robbie and Eddie.
Bottom right: Robbie and his little brother, Eddie.

SPRING 2022 9