what is HFA doing?
In March 2022 and in response to community requests, HFA hosted a Mild Matters Webinar, addressing the needs of people with mild bleeding disorders.
In April 2022, HFA facilitated the first Mild Matters Rap Session at Symposium in Texas. People with mild bleeding disorders gathered and shared concerns about accessing diagnosis and treatment.
In November of 2022, HFA hosted its first Mild Matters Summit to bring together a diverse group of patient stakeholders that represented males with mild bleeding disorders, females with mild bleeding disorders and parents of children with mild bleeding disorders. This group met to discuss the successes and challenges faced by people with mild bleeding disorders.
In 2023 HFA continued Mild Matters conversations at Symposium and is hosting the second Mild Matters Patient Summit.
Moving forward, HFA plans to host a Mild Matters Forum for Health Care Professionals, annual Mild Matters Patient Summits provide resources to community members, and continue conversations at major gatherings, such as Symposium.