We are a community-based, patient-centered organization and are committed to championing the needs of families living with debilitating bleeding disorders. We advocate for safe and effective therapies and quality, affordable health coverage. Ultimately, we seek a better quality of life for all persons with bleeding disorders.
We work in conjunction with other national and state organizations on behalf of families living with bleeding disorders. Our officers and staff maintain a highly visible presence on Capitol Hill and speak regularly before the Food and Drug Administration (FDA), Centers for Disease Control and Prevention (CDC), and other key agencies.
We are committed to community education and provide tools and resources for patients to find local and financial assistance for their care.
HFA is headquartered in Washington, D.C., and partners with over 50 state and local community-based affiliated organizations made up of men, women, children, moms, dads, siblings, grandparents and friends impacted by a bleeding disorder. Additionally, we work with healthcare providers, therapy providers, specialty pharmacies, donors, and insurers, who play a significant role in patients’ and caregivers’ lives.