Shaping a better future

Assisting

From emergency assistance to scholarships, HFA is here to help you through all stages of life.

Educating

As we continue to learn, we offer many tools to help you talk to family members, physicians, and teachers.

Advocating

We are very vocal about your rights and access to care. Join us to learn how to advocate for yourself.

Bleeding disorders are some of the rarest and most expensive diseases to treat over the lifetime of a patient.

Join us

Symposium 2023

Reflect, learn and celebrate during this year’s Symposium, April 13-16 in Orlando, Florida. We’ll have dozens of sessions for blood brothers, blood sisters, children, parents, caregivers and more, along with great opportunities to connect with the friends you love to see each year. You won’t want to miss Final Night as we end with a splash at SeaWorld!

Part THREE

"Unspeakable": Let's Talk About It

Join us on Rare Disease Day, February 28, with Robert C. Cooper, Blood Brother, Creator, Writer, Director, and Executive Producer of the TV series, “Unspeakable.” 

Based on first-person experience and accounts, “Unspeakable” is a mini-series that chronicles the emergence of HIV and Hepatitis throughout Canada during the early 1980-90s and the tragedy that resulted after thousands with bleeding disorders were infected by tainted blood. 

New Patients & Families

A new bleeding disorder diagnosis in the family is hard on everyone. HFA works with the whole family to provide assistance and education.

Women Bleed Too

Women are vastly underrepresented in research related to bleeding disorders and often have delayed diagnosis and care. 

Upcoming Events

Dateline Special Issue

Product & Therapies Guide

Every year, we publish a Special Issue of Dateline Magazine that features current products for treatments as well as emerging therapies.