Privacy Policy

The following terms and conditions are in place to ensure a civil and respectful discussion that add to the richness of the HFA website, publications and communications dialogue.

This privacy statement discloses the privacy practices for Hemophilia Federation of America (HFA) for those persons who utilize HFA’s website or any HFA publications and communications including, but not limited to: Facebook, Twitter, Online Community, Blood Brotherhood Forum, Surveys, Mobile Applications, Educational Symposium, Fundraising Events, Voice Stories Campaign and Other Communications (Emerging).

HFA is dedicated to protecting your privacy and ensuring your ability to use our website, publications and communications. By accessing or using any part of HFA’s website, publications and communications, you agree to become bound by the terms and conditions of this Privacy Statement. If you do not agree with the terms and condition of this Privacy Statement, you are not authorized to use or view this website or any HFA publications and communications.

Information Collection and Usage

Submitting any personal information for any HFA publication or communication is optional. HFA is the sole owner of the information collected via its publications and communications. HFA will not sell, share or rent the information provided other than in the ways mentioned in these terms and conditions. If users provide HFA with personal contact information for the purpose of correspondence or registration for HFA events, HFA will add this information to a database and place your information on a mailing list. HFA will only use this information to further HFA’s mission. At any time you do not wish to be included on the HFA database and mailing list, you have the opportunity to opt-out of receiving future contact, publications, mailing and other communications from HFA.


This site makes use of Internet Technology known as “cookies.” A cookie is a small data file that can contain information such as a user identification that the site uses to track the pages you have visited. The only personal information a cookie can contain is that which you supply. HFA will use cookies to understand and save your preferences for future visits and compile aggregate data about site traffic and site interaction. Credit card information is transmitted via encrypted methods and will remain confidential so that such information is never stored in cookies and HFA will not have access to your credit card information.

Outside Links

HFA’s website, publications and communications contain links to other third-party websites. HFA is not responsible for any information or communications that are posted on the third-party websites. HFA has not reviewed and cannot review all of the material that is made available on the third-party websites and is not responsibility for those privacy practices. Once one leaves HFA’s website, publications and communications, it is your responsibility for taking precautions necessary to protect yourself and your computer system. HFA disclaims any responsibility for any harm resulting from your use of independent third-party websites.

Notification of Changes

HFA reserves the right, at its sole discretion, to modify or replace any part of this Privacy Statement. It is your responsibility to check the Privacy Statement periodically for changes. Your continuing use of HFA’s website publications and communications after such changes to the Privacy Statement constitutes an acceptance of those changes.

Online Community Guidelines

HFA is delighted to provide and maintain online communications which include social media sites, social forums and blogs. HFA operates and maintains the online communications as a community service to share information about issues, events, HFA programs, and services that pertain to the bleeding disorders community.

If you create an account to access these online communications, you are responsible for maintaining the security of your account and agree to abide by all copyright and trademark law. You are fully responsible for all activities that occur under your account and are responsible for any harm resulting from the content you post. By posting content on online communications, you represent and warrant that the information is not misleading to other readers, not spam, does not contain viruses and is not advertising or soliciting unapproved business. HFA shall not be liable for any loss or damages arising from the use of HFA’s online communications by any person using the same.

HFA moderates the online communications but cannot review all material that is posted. The ideas, opinions, views and actions shared in comments through the online communications are those of the author and do not necessarily reflect the policies or positions of HFA. HFA reserves the right to remove or disable access to any posting which HFA, in its sole discretion, deems to be potentially harmful to any person, deems unlawful or in violation of any third party rights.


Your response to surveys will be kept strictly confidential and any information we will report will not contain any identifying information. The information that identifies you will not be shared with anyone except the administrators.

Mobile Applications

HFA does not utilize GPS to track the actual location of HFA app users. GPS will only be used to measure the absolute distance between two reported locations and only when the user requests this to be tracked. If this feature is selected by the user, one of the features it offers is that it can be used to track the total distance exercise during a specific exercise event.

Medical Disclaimer

HFA does not engage in the practice of medicine and thus does not give medical advice. HFA recommends that you consult with your physician or local treatment center before beginning any form of treatment.


All information and content on HFA’s website or publications and communications are protected by copyright and all rights are reserved.

Users are prohibited from modifying, copying, distributing, transmitting displaying, publishing, selling, licensing, creating derivative works or using any information available on or through the site for commercial or public purposes.

If you would like limited permission to reprint articles or other HFA material or content, please email us with your inquiry.