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State of the States
State of the States: Fall 2023
North Carolina breaks budget impasse over Medicaid expansion Republican lawmakers in North Carolina finally agreed on a two-year budget bill in September, breaking the six-month impasse that prevented the state’s Medicaid expansion from going into effect as scheduled on July 1. Up to 600,000 residents are expected to gain Medicaid once
State of the States: Summer 2023
Three more states act to protect consumers from harmful copay accumulators Legislation ensuring health plan consumers have access to the lifeline that third-party copay assistance provides was signed this quarter by governors in Colorado (S.B. 195), New Mexico (S.B. 51), and Texas (H.B. 999), along with the mayor of the
State of the States: Spring 2023
States can resume Medicaid terminations in April, but most are holding back The U.S. Department of Health and Human Services (HHS) has notified state Medicaid programs that the COVID-19 public health emergency (PHE) will formally end on May 11, 2023. The PHE has been continuously renewed in 90-day increments since
State of the States: Winter 2022
States win authority to restart Medicaid eligibility determinations in April The omnibus spending legislation passed late in the year by Congress will let states resume Medicaid eligibility determinations in April 2023, even if the Administration decides to continue the COVID-19 public health emergency (PHE) past that time. The National Association
What's up in Washington?
Washington Wire: Court Overturns Accumulator Adjuster Rule
Court orders HHS to revise federal regulations permitting harmful copay accumulators In a preliminary victory for consumers, a federal
Word from Washington: September 2023
On Sept. 18, the Centers for Medicare and Medicaid Services (CMS) released final regulations that will make it easier
Word from Washington: August 2023
Advocates are responding to yet another payer-side, cost-saving scheme that harms patient access to medicine. The latest version, the
Word from Washington: July 2023
July saw mounting coverage losses from the national Medicaid unwinding. As of July 28, nearly four million people have
HFA News
Washington Wire: Court Overturns Accumulator Adjuster Rule
Court orders HHS to revise federal regulations permitting harmful copay accumulators In a preliminary victory for consumers, a federal judge in the District of Columbia set aside federal regulations that
Word from Washington: September 2023
On Sept. 18, the Centers for Medicare and Medicaid Services (CMS) released final regulations that will make it easier for millions of people who receive Supplemental Security Income (SSI) to
Blog: Intern Introspective #7
It feels incredibly surreal to think about the fact that this is my final week at HFA this summer, and that in less than a week I will no longer
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Dear Addy: In-District Legislative Meetings
Dear Addy, With Congress in recess, how can I continue to participate in legislative advocacy? Signed, Bleeding Disorders Advocate Dear Bleeding Disorders Advocate, Every August,
Dear Addy: Finding Community
Dear Addy, I am the only person I know who has a bleeding disorder. I don’t know any other patients at my HTC, and I
Dear Addy: Eager to Advocate
Dear Addy, I am in my teens and am looking to get involved in advocacy within the bleeding disorders community. Can you share any tips
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Dateline Federation Magazine
Dateline contains the latest news and touching stories about the people in our vibrant community. Discover what’s happening on the state and national level, the latest in gene therapy and advancements, as well as valuable information that impacts the quality of life for the bleeding disorders community.
Infusing Love
Over the Rainbow
“3, 2, 1,” counting down, I held my breath and flipped the test over. There they were – two pink lines staring up at me.
A Breakfast with Love
On a typical day, mornings include waking up, getting out of bed, drinking coffee, taking a bath and starting your daily routine. The kids are
504 Plans
Hello, my name is Lupe Torres! I would like to start by thanking everyone for the opportunity to let me share my experience with the
Speaking from the Heart
In my family, we have always been very open about issues related to hemophilia. I already knew from a very young age that being the
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