Latest News

Monitoring and Reporting

State of the States

State of the States: Spring 2022

Copay accumulator prohibitions advance in several states. Maine and Washington signed new laws this quarter that prohibit health plans from pocketing the third-party assistance intended

State of the States: Winter 2022

Progress slows on state legislation to prohibit harmful copay accumulators After unprecedented success over the past two sessions, legislation to protect people who rely on

State of the States: Fall 2021

Prohibiting copay accumulators remains a state priority for 2022 Legislation to prohibit health plans from depriving consumers of any benefit from third-party assistance with cost-sharing

State of the States: Summer 2021

In this quarter’s news: advocates notch another win, securing state level protection against copay accumulator adjusters; Missourians begin enrolling in the state’s expanded Medicaid program; and ACA marketplaces report 2021 enrollment totals, rates for 2022, and other developments.

On Point

What's up in Washington?

Washington Wire: August 2022

On August 16, 2022, President Biden signed into law the Inflation Reduction Act (IRA). The massive bill took a

Happening Highlights

HFA News

Females in Research Sharing and Translation (FIRST) Project

Inherited bleeding disorders, such as hemophilia and von Willebrand disease (vWD), have long been under-recognized as causes for bleeding in females. Part of the problem with this under recognition has been the lack of opportunities for female engagement in research related these bleeding disorders.

HFA names Barbra Kavanaugh as interim CEO

HFA is pleased to announce the hiring of Barbra Kavanaugh, a seasoned non-profit business executive, as Interim CEO.Barbra Kavanaugh has served as an interim executive in several metro DC non-profit

Community Stories

Infusing Love

woman on beach with rainbow

Over the Rainbow

“3, 2, 1,” counting down, I held my breath and flipped the test over. There they were – two pink lines staring up at me.

waffle hearts

A Breakfast with Love

On a typical day, mornings include waking up, getting out of bed, drinking coffee, taking a bath and starting your daily routine. The kids are

mom and son

504 Plans

Hello, my name is Lupe Torres! I would like to start by thanking everyone for the opportunity to let me share my experience with the

kid on bike

Speaking from the Heart

In my family, we have always been very open about issues related to hemophilia. I already knew from a very young age that being the

On Air

Advocacy
Podcasts

Join us each month as we provide a continuous flow of conversations about all things bleeding disorders. 

Our Latest Issue

Dateline Federation Magazine

Dateline contains the latest news and touching stories about the people in our vibrant community. Discover what’s happening on the state and national level,  the latest in gene therapy and advancements, as well as valuable information that impacts the quality of life for the bleeding disorders community.