Latest News

Monitoring and Reporting

State of the States

State of the States: Spring 2023

States can resume Medicaid terminations in April, but most are holding back  The U.S. Department of Health and Human Services (HHS) has notified state Medicaid programs that the COVID-19 public health emergency (PHE) will formally

State of the States: Winter 2022

States win authority to restart Medicaid eligibility determinations in April The omnibus spending legislation passed late in the year by Congress will let states resume Medicaid eligibility determinations in April 2023, even if the Administration

State of the States: Fall 2022

In this edition of State of the States, South Dakota votes to expand Medicaid, Oregon receives landmark approval to provide continuous Medicaid coverage for young children, and Delaware joins 14 other states in protecting copay

State of the States: Summer 2022

Copay accumulator prohibitions advance in several states. Maine and Washington signed new laws this quarter that prohibit health plans from pocketing the third-party assistance intended to help consumers pay for annual cost-sharing obligations. They are

On Point

What's up in Washington?

Word from Washington: May 2023

Lawmakers in May devoted close attention to the role that pharmacy benefits managers (PBMs) play in our health care

The Complexity of Unwinding Medicaid

The long-heralded Medicaid “unwinding” has begun. As previously reported, state Medicaid programs have, since the start of the COVID-19 pandemic,

Happening Highlights

HFA News

Dan Kelsey Headshot

HFA Welcomes Dan Kelsey as Chief Executive Officer

Experienced executive brings outcome-driven leadership to the national nonprofit patient advocacy group.  WASHINGTON, DC, April 12, 2023 – The Board of Directors of Hemophilia Federation of America (HFA) unanimously selected

group of young adults in front of Capitol

Finding Strength Through Diversity

This Black History Month, HFA asks our community to think back on the family members they’ve loved and the moments they created. We ask our community to think on the

Have a policy question? Confused about insurance issues? Ask Addy! The answer to your question may be the next Dear Addy.

Ask Addy

Dear Addy: Project CALLS

Dear Addy,  I recently attended an event and learned about submitting issues with my insurance to HFA’s Project CALLS. I have an insurance issue, however,

Read More »

Dear Addy: Pharmacy Choice

A community member writes in about their struggles with a friend who is pressuring them to switch to the specialty pharmacy that they work for. Addy share tips with writer as how to try to both keep their friendship and their pharmacy.

Read More »

Dear Addy: Informed Voter

Dear Addy, I’d like to become more informed about candidates’ positions on health reform issues for the next election. Can you recommend resources to find

Read More »
Our Latest Issue

Dateline Federation Magazine

Dateline contains the latest news and touching stories about the people in our vibrant community. Discover what’s happening on the state and national level,  the latest in gene therapy and advancements, as well as valuable information that impacts the quality of life for the bleeding disorders community.

Community Stories

Infusing Love

woman on beach with rainbow

Over the Rainbow

“3, 2, 1,” counting down, I held my breath and flipped the test over. There they were – two pink lines staring up at me.

waffle hearts

A Breakfast with Love

On a typical day, mornings include waking up, getting out of bed, drinking coffee, taking a bath and starting your daily routine. The kids are

mom and son

504 Plans

Hello, my name is Lupe Torres! I would like to start by thanking everyone for the opportunity to let me share my experience with the

kid on bike

Speaking from the Heart

In my family, we have always been very open about issues related to hemophilia. I already knew from a very young age that being the

On Air


Join us each month as we provide a continuous flow of conversations about all things bleeding disorders.