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State of the States
State of the States: Q4 2022
States win authority to restart Medicaid eligibility determinations in April The omnibus spending legislation passed late in the year by Congress will let states resume Medicaid eligibility determinations in April 2023, even if the Administration
State of the States: Fall 2022
In this edition of State of the States, South Dakota votes to expand Medicaid, Oregon receives landmark approval to provide continuous Medicaid coverage for young children, and Delaware joins 14 other states in protecting copay
State of the States: Summer 2022
Copay accumulator prohibitions advance in several states. Maine and Washington signed new laws this quarter that prohibit health plans from pocketing the third-party assistance intended to help consumers pay for annual cost-sharing obligations. They are
State of the States: Spring 2022
Progress slows on state legislation to prohibit harmful copay accumulators After unprecedented success over the past two sessions, legislation to protect people who rely on copay assistance has struggled to gain traction in state legislatures
What's up in Washington?
The Complexity of Unwinding Medicaid
The long-heralded Medicaid “unwinding” has begun. As previously reported, state Medicaid programs have, since the start of the COVID-19 pandemic,
Word from Washington: January 2023
HFA reports on a particularly concerning insurance problem unfolding in Tennessee, and how HFA is responding; news on Medicaid eligibility reviews; changes in blood donation policy; and much more.
FDA Proposes Blood Donation Changes
On Friday, January 27, 2023, the U.S. Food and Drug Administration announced proposed changes to national blood and plasma
Word from Washington: December 2022
On December 23rd, Congress passed a $1.7 trillion year-end spending package that averts a government shutdown and funds the
HFA News
Finding Strength Through Diversity
This Black History Month, HFA asks our community to think back on the family members they’ve loved and the moments they created. We ask our community to think on the
Summary of HFA’s Convening for Research on Women with Bleeding Disorders
On October 28, 2022, thirty-two bleeding disorders (BD) community stakeholders met to learn about BD in women, discuss gaps in care and research for women, and read, discuss, and adopt
Press Release: First-Ever Gene Therapy Approved for Hemophilia B
FOR IMMEDIATE RELEASE First-Ever Gene Therapy Approved for Hemophilia B National patient advocacy organization issues formal statement. WASHINGTON, D.C., Nov. 23, 2022—Hemophilia Federation of America (HFA), a national advocacy leader
Have a policy question? Confused about insurance issues? Ask Addy! The answer to your question may be the next Dear Addy.
Ask Addy
Dear Addy: Project CALLS
Dear Addy, I recently attended an event and learned about submitting issues with my insurance to HFA’s Project CALLS. I have an insurance issue, however,
Dear Addy: Pharmacy Choice
A community member writes in about their struggles with a friend who is pressuring them to switch to the specialty pharmacy that they work for. Addy share tips with writer as how to try to both keep their friendship and their pharmacy.
Dear Addy: Giving Back
Dear Addy, I want to give back this holiday season, but I’m not sure how. Can you recommend ways to be more involved in my
Dear Addy: Holiday Self-care
Dear Addy, With the holidays ahead of us, I’m trying to focus on taking care of myself. However, I struggle to do this between family,
Dear Addy: History of Bleeding Disorders
Dear Addy, My daughter has informed me that most people in her generation don’t know anything about AIDS, Hemophilia, or Ryan White. I find this
Dear Addy: Informed Voter
Dear Addy, I’d like to become more informed about candidates’ positions on health reform issues for the next election. Can you recommend resources to find
Dateline Federation Magazine
Dateline contains the latest news and touching stories about the people in our vibrant community. Discover what’s happening on the state and national level, the latest in gene therapy and advancements, as well as valuable information that impacts the quality of life for the bleeding disorders community.
Industry & Medical News
Infusing Love
Over the Rainbow
“3, 2, 1,” counting down, I held my breath and flipped the test over. There they were – two pink lines staring up at me.
A Breakfast with Love
On a typical day, mornings include waking up, getting out of bed, drinking coffee, taking a bath and starting your daily routine. The kids are
504 Plans
Hello, my name is Lupe Torres! I would like to start by thanking everyone for the opportunity to let me share my experience with the
Speaking from the Heart
In my family, we have always been very open about issues related to hemophilia. I already knew from a very young age that being the
Advocacy
Podcasts
Join us each month as we provide a continuous flow of conversations about all things bleeding disorders.