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Advocacy News

25 Patient and Provider Groups Applaud June Supreme Court Ruling Though Express Concern About Other Plaintiffs Keeping FDA Authority Challenge Alive

Hemophilia Federation of America is among 25 organizations representing patients with serious health conditions and disabilities and their providers who applaud the Supreme Court’s unanimous June ruling reversing the Fifth Circuit’s decision in Alliance for Hippocratic Medicine et al. v FDA et al, on the grounds that the plaintiffs don’t

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Advocacy News: June 2024

Word from Washington Federal Courts Unanimous Supreme Court dismisses challenge to FDA approval for mifepristone In a case that threatened to restrict access to hormonal therapies for women with bleeding disorders, the U.S. Supreme Court unanimously reversed lower court decisions that effectively invalidated the 2000 approval by the Food and

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Advocacy News: May 2024

Word from Washington Federal Agencies CMS extends waiver flexibilities, reporting requirements for Medicaid “unwinding” redeterminations According to the latest KFF Medicaid Unwinding Enrollment Tracker,  nearly 23 million Americans have lost Medicaid coverage since states were allowed to resume eligibility verifications following the COVID-19 public health emergency (PHE). Nearly 70 percent

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Our Latest Issue

Dateline Federation Magazine

Dateline contains the latest news and touching stories about the people in our vibrant community. Discover what’s happening on the state and national level,  the latest in gene therapy and advancements, as well as valuable information that impacts the quality of life for the bleeding disorders community.

Happening Highlights

HFA News

May is Hepatitis Awareness Month

In 2001, the Centers for Disease Control and Prevention designated the month of May as Hepatitis Awareness Month to bring awareness and attention to those living with viral hepatitis. In

Scholarship Recipient: Michael Potanin

2023 HFA Educational Scholarship Johns Hopkins University, Maryland I am honored to have been chosen as a recipient of the HFA Educational Scholarship. This recognition provides immense support to me

Have a policy question? Confused about insurance issues? Ask Addy! The answer to your question may be the next Dear Addy.

Ask Addy

Dear Addy: The Marketplace

Dear Addy,  I am looking at health insurance options for 2024 and keep seeing terms like “marketplace” and “open enrollment.” What does this mean? What

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Dear Addy: SSI Eligibility

Dear Addy, I receive disability benefits under the Supplemental Security Income (SSI) program and, through SSI, qualify for Medicaid. I am concerned about hidden pitfalls

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On Air


Join us each month as we provide a continuous flow of conversations about all things bleeding disorders. 

Community Stories

Infusing Love

woman on beach with rainbow

Over the Rainbow

“3, 2, 1,” counting down, I held my breath and flipped the test over. There they were – two pink lines staring up at me.

waffle hearts

A Breakfast with Love

On a typical day, mornings include waking up, getting out of bed, drinking coffee, taking a bath and starting your daily routine. The kids are

mom and son

504 Plans

Hello, my name is Lupe Torres! I would like to start by thanking everyone for the opportunity to let me share my experience with the

kid on bike

Speaking from the Heart

In my family, we have always been very open about issues related to hemophilia. I already knew from a very young age that being the