For more than 50 years a small team at the Centers for Disease Control and Prevention has helped protect Americans living with hemophilia and other inherited blood disorders. Its work rarely makes headlines. But for families who depend on safe treatment, accurate diagnosis, reliable public health data and evidence-based care

  In April 2026, Hemophilia Federation of America submitted written testimony to the House Committee on Appropriations Subcommittee on Labor, Health and Human Services, Education and Related Agencies. As HFA pursues continued support of world-class care for patients and ensuring the nation’s duty and responsibility to product safety, the testimony

For people living with bleeding disorders, access to treatment isn’t optional, it’s life-sustaining. Yet every year, too many individuals and families are forced to navigate a healthcare system that makes essential care harder to afford, harder to access, and harder to sustain. At HFA, we believe in building clear pathways

By Adam Alver, Policy Director A New Year, A New Format, and An Important Reminder In 2026, HFA plans to share one Word From Washington and one State of the States each month, alternating them to keep our readers updated. HFA will also publish special reports, such as last year’s