Monitoring and Reporting

Advocacy News

Word From Washington: Election Day and Your Voice In Advocacy

By Adam Alver, Policy Director Election Day – An Action of Advocacy Today is Election Day! Across the country, Americans are choosing the leaders who will make decisions about health care, federal funding, public health, and oversight. Those decisions are critically important for the bleeding disorders community. They affect whether

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HFA Special Policy Report: New Medicaid Rules and Medical Exemptions

By Adam Alver, Policy Director Medicaid Work Reporting Requirements Are Here Major changes to Medicaid are already reaching patients in several states. Beginning no later than January 1st, 2027, certain adults will have to show they are working, attending school, volunteering, or taking part in another approved activity to enroll

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Editorial: The Preservation of Protection

For more than 50 years a small team at the Centers for Disease Control and Prevention has helped protect Americans living with hemophilia and other inherited blood disorders. Its work rarely makes headlines. But for families who depend on safe treatment, accurate diagnosis, reliable public health data and evidence-based care

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HFA Submits Testimony to House Appropriations Committee Subcommittee

  In April 2026, Hemophilia Federation of America submitted written testimony to the House Committee on Appropriations Subcommittee on Labor, Health and Human Services, Education and Related Agencies. As HFA pursues continued support of world-class care for patients and ensuring the nation’s duty and responsibility to product safety, the testimony

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Happening Highlights

HFA News

Six Awarded CVS Eric Delson Scholarship

WASHINGTON – One medical student. One doctoral researcher in optics and quantum materials. Three students currently enrolled in the sciences, including one wanting to become a physician assistant. Another studying

Kids in classroom raising hands

Answering Back to School Questions

When the first school bell rings each year, parents and children with bleeding disorders start to answer a large number of questions. Thankfully, HFA is here with plenty of resources

Don’t Leave Home Without It

If you’re over 40, you will likely remember a series of commercials featuring various semi-famous actors and celebrities telling you about the need to carry the American Express card, and

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Community Stories

Infusing Love

woman on beach with rainbow

Over the Rainbow

“3, 2, 1,” counting down, I held my breath and flipped the test over. There they were – two pink lines staring up at me.

waffle hearts

A Breakfast with Love

On a typical day, mornings include waking up, getting out of bed, drinking coffee, taking a bath and starting your daily routine. The kids are

mom and son

504 Plans

Hello, my name is Lupe Torres! I would like to start by thanking everyone for the opportunity to let me share my experience with the

kid on bike

Speaking from the Heart

In my family, we have always been very open about issues related to hemophilia. I already knew from a very young age that being the

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