Page 2 - HFA_Dateline_2019_Q1_Spring

EXECUTIVE CORNER

Dear Friends, Assisting, educating, and advocating for the
My wife is a mother of two daughters with von Willebrand Disease! bleeding disorders community since 1994.
When Kinzie was first diagnosed, I knew Heather was just as nervous as
I was, but honestly she managed better than I. As we started to infuse at Volume 20 • Issue 1 • Spring 2019
home, Heather was the first to learn to infuse. She is a nurse and accustomed
to starting IVs, but starting them on your child is a very different situation. EXECUTIVE LEADERSHIP
These days we are deep into sports, music and pre-teen issues. Heather runs Board Chair • Josh Hemann
lead on many of the latter conversations. As a mom she wants to protect her
children, but help encourage ownership of their condition. President & CEO • Kimberly Haugstad, MBA

Kinzie has done well thus far in managing her infusions and bleeds. She PRODUCTION TEAM
loves sports, taking ownership over her vWD, knowing when to treat and Editor • Emily Roush-Bobolz
when she may need to sit out of sports, as hard as that may be. That is Art Direction • Michael DeGrandpre
something that makes us both proud! Design & Layout • Kristin Mitchell Design, Inc.
My wife has led the way through some of our journey and helped me become Copy Editor • Ann LeWalk
an empowered parent. When I step back to view what she has meant not Informative Communications Manager
only to our daughters with their bleeding disorders, but our kids overall, a
few things come to mind: comfort, strength and encouragement. Kyle McKendall
She is there for our kids whether it is for homework, an infusion, someone to
cheer them on during sports/music or just a shoulder to lean on. Contributing Writers
Andy Anderson, HFA Staff
Josh Hemann Emily Roush-Bobolz, HFA Staff
Martha Boria Negrón, HFA Staff
Board Chair
Ann LeWalk, HFA Staff
Above: Heather, wife of HFA
Board Chair Josh Hemann, Contributing Photographers
with their two daughters, Gina Richards, Michael DeGrandpre
Kinzie, left, and Jayla.
The information printed in
2 DATELINE FEDERATION < www.hemophilafed.org Dateline Federation is provided for
general purpose use. HFA does not give
medical advice or engage in the practice of
medicine and recommends that you consult
with your physician or local treatment center
before beginning any form of treatment.

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