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HAPPENING HIGHLIGHTS

NEW HFA Introduces New Toolkit
PARENTS
TOOLKIT To continue the commitment to providing educational resources to families and individuals with
bleeding disorders, Hemophilia Federation of America has created the New Parents Toolkit to
Resources to help you understand add to the library of toolkits available on the website.
and succeed.
Having a new baby is a joyful, yet challenging, time in a parent’s life. When the new baby is
diagnosed with a bleeding disorder, it adds a whole new layer of stress to the growing family.
The new toolkit can help new parents tackle the future, familiarize themselves with bleeding
disorders and the bleeding disorders community, and learn more about the baby’s new diagnosis.

More than a dozen toolkits can be found on the HFA website – each with valuable resources,
downloadable materials and webinars.

Visit www.hemophiliafed.org/toolkits to find the New Parents Toolkit, as well as HFA’s other
helpful toolkits.

Charity Songwriting Competition Supports
Bleeding Disorders

Music for the Cause National Charity Songwriting Competition is now accepting entries for 2019!
Six winners will be decided by music professionals, include Chris Mann from NBC’s The Voice, and
will share a $13,000 cash prize. This national fundraising event supports the bleeding disorders
community. Deadline to enter is May 15. Enter online at MusicForTheCause.org.

PPTA Names New President and CEO

The Board of Directors of the Plasma Protein Therapeutics Association has named
Amy Efantis as its next President and Chief Executive Officer.

She most recently served as Vice President, Global Public Policy & Government
Affairs at Biogen. Efantis joins PPTA following the retirement of President and
CEO Jan M. Bult on Dec. 31, 2018. PPTA is a trade association that represents more than 750
human plasma collection centers in North America and Europe as well as the manufacturers of
life-saving plasma protein therapies.

Chris Bombardier Joins Save One Life as
Executive Director

Save One Life, an international nonprofit that assists people with hemophilia
in developing countries, welcomed Christopher G. Bombardier as their new
executive director earlier this year.

Bombardier, who has severe hemophilia B, is known for being the first person
with hemophilia to climb the Seven Summits. He began his Seven Summits climbs in 2011 to raise
awareness globally of the disparity in treatment for those with bleeding disorders in developed
and developing countries. Along the way, he joined the board of Save One Life, and raised more
than $100,000 for the nonprofit.

Previously he was program facilitator with GutMonkey, an outdoor adventure leadership company.
He earned a master’s degree in global health from Northwestern University, which will help him

evolve and grow Save One Life’s programs. S

4 DATELINE FEDERATION < www.hemophilafed.org