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IN THIS ISSUE:

ARTICLES

	 6	 Former President and CEO, Kimberly Haugstad,
		 reflects on 11 years with HFA.

	 10	  Recent drug and ancillary product recalls have              6
		     left patients scared and confused. We break                 12
		     down how the FDA determines when a drug                     18
		     is recalled.                                                20

	 12	 COVER STORY: Patient advocate, Natalie Parker,
		 shares her experience on the Advocacy
		 Leadership Council and time on Capitol Hill.

	 16	 Medicare 101: Understanding aging and
		 disability coverage options.

	 30	 Project CALLS: Second quarter CALLS report
		 reveals important information about insurance
		 issues.

	SPECIAL FEATURES

	 8	 Happening Highlights
		 • HFA Awarded Capacity-Building Grant

     		 • FamiliesUSA Recognizes How Surprise Billing
                 Affects Bleeding Disorders Patients

	 18	  Sangre Latina
		     • La Menstruación es un Proceso Natural como

         Cualquier Otro

	 20	Inspiring Impact
               • HFA’s Team Resilience Joins Iconic Cycling Event
                 to Spread Awareness Nationally

		 • Annual Gears for Good National Ride Raises
                 Valuable Funds for Helping Hands

	 22	  Kids Corner
		     • Being a Young Hero (aka Advocate for Bleeding

         Disorders) Starts with Knowing You and Your Family

                              ON THE COVER.
                              Members of HFA’s new Advocacy Leadership Council gather in Washington, D.C., during the annual Patient Fly-in in June.
                              The group continues to participate in intensive advocacy education to become an army of advocates for bleeding disorders
                              nationally and in their home states.

	 FALL 2019	 3
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