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IN THIS ISSUE:
ARTICLES
6 Former President and CEO, Kimberly Haugstad,
reflects on 11 years with HFA.
10 Recent drug and ancillary product recalls have 6
left patients scared and confused. We break 12
down how the FDA determines when a drug 18
is recalled. 20
12 COVER STORY: Patient advocate, Natalie Parker,
shares her experience on the Advocacy
Leadership Council and time on Capitol Hill.
16 Medicare 101: Understanding aging and
disability coverage options.
30 Project CALLS: Second quarter CALLS report
reveals important information about insurance
issues.
SPECIAL FEATURES
8 Happening Highlights
• HFA Awarded Capacity-Building Grant
• FamiliesUSA Recognizes How Surprise Billing
Affects Bleeding Disorders Patients
18 Sangre Latina
• La Menstruación es un Proceso Natural como
Cualquier Otro
20 Inspiring Impact
• HFA’s Team Resilience Joins Iconic Cycling Event
to Spread Awareness Nationally
• Annual Gears for Good National Ride Raises
Valuable Funds for Helping Hands
22 Kids Corner
• Being a Young Hero (aka Advocate for Bleeding
Disorders) Starts with Knowing You and Your Family
ON THE COVER.
Members of HFA’s new Advocacy Leadership Council gather in Washington, D.C., during the annual Patient Fly-in in June.
The group continues to participate in intensive advocacy education to become an army of advocates for bleeding disorders
nationally and in their home states.
FALL 2019 3