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HAPPENING HIGHLIGHTS

HFA Given Highest Honors by
Nationally-known Nonprofit Watchdogs

Hemophilia Federation of America was recognized with a four-star rating by
Charity Navigator and a Platinum Seal of Transparency by GuideStar, two
respected nonprofit watchdogs. With an annual operating budget of more than
$6 million, HFA relies on a diversity of funding sources and is proud to regularly
acknowledge donors and sponsors, which helped contribute to the recent honors.
Low administrative and fundraising expense means HFA is able to direct nearly
94 percent of all donations toward educational programming for patients living
with bleeding disorders and their families.

The four-star rating with Charity Navigator is the highest honor given by the
organization which evaluates and monitors the financial health, accountability
and transparency of nonprofits in the United States. The Platinum Seal of
Transparency is the top honor given by GuideStar, indicating HFA has been
forthcoming in providing key information to the organization’s nonprofit profile,
which is available to the public and displays the organization’s measurable impact.

HFA Awarded PCORI Capacity-Building Grant
to Engage Women

Hemophilia Federation of America has received a Eugene Washington PCORI
Engagement Award from the Patient-Centered Outcomes Research Institute
for its FIRST (Females in Research Sharing and Translation) Project to improve
opportunities for women to be engaged in patient-centered research.

The capacity-building grant will support HFA’s FIRST Project which will begin by
identifying how women are currently involved in research and discovering any
barriers that exist to their participation. Following the initial step of identifying
female involvement, the aim of HFA’s FIRST Project is to increase female influence
and engagement in the development and implementation of research and the
dissemination of research results, which ultimately affects the clinical care of
women with bleeding disorders. HFA will host focus groups of women at events at
local organizations throughout the U.S. To learn more, visit www.hemophiliafed.
org/research or email research@hemophiliafed.org to express interest in a focus
group.

New YouTube Series Helps Hemophilia A
Patients

Challenge Accepted, a YouTube series created by pharmaceutical company
Genentech, is helping hemophilia A patients and caregivers face the reality of
living with the bleeding disorder. Each episode tackles an issue facing many in
the hemophilia community, such as managing routine, aging, self-care and more.
While educating patients, Genentech manages to have fun with the series with
host Justin Willman with more of a feel of reality TV than a pharmaceutical
campaign. Genentech worked with ad agency 21Grams on the series.

8 DATELINE FEDERATION < www.hemophiliafed.org