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A Message from Outgoing President
and CEO, Kimberly Haugstad
When I first came to Hemophilia Federation of America I had vaguely heard of HFA as that little national organization
in 2008, my babies were 4 and 6. I had done a little that represented people with bleeding disorders and their
volunteering around the country and served on my local families. At HFA, the staff and board were supposed to have
bleeding disorders board. Living the dream as a young family huge hearts, a lot of great ideas and a desire to build. I like
with a growing consulting business, we had a fair handle on big hearts. I like big ideas. I like to build. I quickly realized I
living with hemophilia, but we were paying $2,400 per month liked HFA and while it was not our plan, I decided to join the
in health insurance premiums with a $9,000 deductible. team. I knew how to run a successful business, how different
Knowing my son would get his factor made it a necessity. I could running a nonprofit be? Not as much as you might
will never forget getting a notice that year that our monthly think actually! What I absolutely did not imagine was that I
premiums would be increasing slightly to just over $2,800. would find it so rewarding and grow to love our community
My husband and I realized one or both of us should find a so much that I would stay more than a decade!
corporate job with insurance. He did. I planned to continue
consulting. I came to HFA because of my son. I did not want his
hemophilia to limit him. I stayed because of you, our bleeding
disorders community. You deserve the right to learn
everything about your disorder and the right to advocate
for yourselves and have the same opportunity as anyone
without a chronic condition. Helping you do that has been
my honor and privilege.
6 DATELINE FEDERATION < www.hemophiliafed.org
