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IN THIS ISSUE
ARTICLES
Assisting, educating, and advocating for the Weaving a Vibrant
bleeding disorders community since 1994. Tapestry — Bleeding
Volume 21 • Issue 2 • Late Summer 2020 disorders community
members who also find
EXECUTIVE LEADERSHIP a place in the LBGTQIA+
Board Chair • Allie Ritchey community share their
experience.
President & CEO • Dr. Sharon Meyers, CFRE
Seeking Health
PRODUCTION TEAM Insurance Coverage
Editor • Emily Roush-Bobolz During COVID-19 — We
Art Direction • Michael DeGrandpre
Design & Layout • Ashley Williams explore the options for
and Kristin Mitchell Design Inc. bleeding disorders patients
Copy Editor • Kit Salisbury and families to find healthcare.
Informative Communications Manager
Joint Health — A look at
Kyle McKendall
what we learned during a joint
Contributing Writers health survey with participants
Kimberly Ramseur, JD, M.P.H., HFA Staff of HFA’s Blood Brotherhood
and Families programs.
Andy Anderson, Guest Writer
DeBran Tarver, Ph.D., M.P.H., HFA Staff SPECIAL FEATURES
Contributing Photographers A Look at Symposium
Michael DeGrandpre, Gina Richards
Symposium 2020 quickly
The information printed in turned into a successful virtual
Dateline Federation is provided for event and HFA plans ahead for
general purpose use. HFA does not give Symposium 2021.
medical advice or engage in the practice of
medicine and recommends that you consult Find Your Place — A look at HFA’s
with your physician or local treatment center
before beginning any form of treatment. program areas and how to connect to
like-minded individuals and families in
Requests for permission to translate or reprint the bleeding disorders community.
contents of Dateline Federation should be
directed to info@hemophiliafed.org. Volume 21 • Issue 2 • Summer 2020 ON THE COVER.
Hemophilia Federation of America surveyed families and blood
999 N. Capitol Street NE • Suite 201 Joint Health: The Knowledge brothers on their knowledge of joint health and physical activity
Washington, DC 20002 and Understanding of Maintaining safe for joints. We break down the results of the survey and what
800.230.9797 Healthy Joints with a Bleeding we discovered. Read more on page 22.
info@hemophiliafed.org Disorder
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©2020 Hemophilia Federation of America. Access to Health Insurance
All rights reserved. During a Pandemic
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Connect with us on social media for daily posts Miss Summer Camp
and updates about what’s happening at HFA. This Year? Learn About
HFA’s Solution
page 20 LATE SUMMER 2020 3
